Helping You
Education & Support
There are many ways that you can get a burn
To Assist You
There are many ways that you can get a burn
In Memoriam – Doreen Akrigg
Fifth April 2024, saw the passing of one very dear and longstanding fundraiser, and supporter of our charity, 96 year old, Doreen Akrigg.
When her then 8 year old grandson, Ben Cotton was burned in 1988, Doreen took it upon herself to organise regular ‘Knit and Natter’ groups in her home, and held knitting stalls with burn survivor, Helen Hall, at Middlemore Hospital and outside supermarkets all around Auckland.
She held these stalls for many years which raised many thousands of dollars for us.
Her staunch dedication and passion became instrumental in giving our charity the solid financial foundation it has today, and for this we will be forever grateful.
Rest in Peace dear Doreen, your efforts for the Burn Support Group Charitable Trust will never be forgotten.
Farewell – Jim Kayes
Best wishes, and our deepest appreciation of your tremendous support
Sadly, we farewell Jim Kayes as the Charity Ambassador for the past 5 years.Jim has volunteered his time, skills, personality and wonderful character for many events over the years. The Charity has been extremely fortunate to have Jim host, share his story, create much laughter and guest speak at the Children’s Camps, Survivor Sundays and fundraisers…
After some reflection Jim had to come to the decision that his life is busy, as a father of two, a high profile personality, something had to give. The Burn Support Group wishes to acknowledge all that Jim has contributed. As a Charity we feel privileged that you have supported above and beyond the burn survivor community during your time.
It has been a pleasure to meet you, hear your stories and it is contagious to be around your positive attitude.
On behalf of the Burn Support Charitable Trust, we wish Jim and his family all the very best for the future and his further endeavours.
Thank you to Linda
The Burn Support Charitable Trust wishes to acknowledge and express our deepest appreciation to Linda Legge, Clinical Nurse Specialist at Kidz First Hospital, for the past 15 years working with burn survivors from throughout New Zealand.
Linda spent 37 years working for Counties as a dedicated nurse alongside her peers. For the past 7 years Linda has been a great support towards the Charity involved in many of the initiatives provided to Kidz First that will benefit and enhance rehabilitation during the hospital stay.
Linda’s input has been invaluable and we thank you sincerely for your time and contribution.
Linda has resigned from her role, earning well deserved time with her family,
From the Trustees, Board Members and staff at Burn Support Group we wish you all the best for your future endeavours and what life has in store for you!
Kerrie Rutherford
It is with great regret and sadness that we accept the resignation of our Board Member, Trustee and Treasurer, Kerrie Rutherford.
We have been the fortunate recipient of Kerrie’s expertise, not only as an ‘Office Volunteer’ (2016), but also when she subsequently utilised her well honed financial and business skills, using them to the max in her later roles within our charity, totally upgrading and revamping our recording systems.
Kerrie not only devoted untold hours in doing this, but her professionalism has also been greatly appreciated in designing the graphics for our special events, plus voluntarily supporting Michele at our last two annual Women’s Retreats.
Her wealth of skills, combined with her compassion and empathy for our burn survivors has been invaluable in assisting us provide a high continuum of care for the special needs of those within our charity.
We will miss you so much Kerrie, but totally understand your current commitments and wish only the very best for you and your future endeavours.
Thank you again from the bottom of our hearts.
Thank you, Bert (May 2021)
The Burn Support Charitable Trust wishes to acknowledge and thank Mr Albert Alfred Chant (known as Bert) for his generous and kind bequest left to contribute and support the Burn Community throughout New Zealand.
Our sincere appreciation to the extended family for this wonderful gesture and thoughtfulness.
Alan Jeffry Breslau
This year saw the passing of a true gentleman.
On behalf of the Burn Support Charitable Trust we remember, with much fondness and appreciation, the wonderful dignified, witty, charming, passionate, dedicated life that we have all had the privilege to share with Alan Breslau.
Words alone cannot express the extensive journey Alan has shared globally, touching the lives and hearts of so many fortunate people.
Alan’s talents, pioneer foresight with compassion and empathy shall never be forgotten, his well deserved accolades and awards always the reminder of this beautiful man’s achievements.
Alan will be missed by many, but remembered by all.
Burn Support Group Charitable Trust NZ.
We are deeply saddened to share that our founder, leader, encourager, and friend Alan Breslau passed away on 26 November 2020.
Alan was deeply loved by the burn community. His strong dedication, long term commitment, and unwavering desire to help others made him truly one of a kind.
Alan built the opportunity for the survivors around the world to connect, find healing, and learn to survive and thrive again.
Please keep Delwyn Breslau and their family in your thoughts at this time.
Phoenix Society Team/ USA, Amy Acton
Tribute to Alan
…“What a Man”…
I could talk about how Alan was born in New York and that he graduated in Music, Arts and Chemical engineering while specializing in Plastic’s … but I won’t… Alan would have hated that word… “WONT”
…“What a Man”…
I could also talk about how Alan was the Technical director of two very large plastic’s company’s in New York and Hong Kong and that he had written many chapters for books and resource papers in regards to polymers, plastic’s and resins and that he had also written and published two of his own books on his life experiences from the time of his plane crash, good, bad, and indifferent… But I’m not going to.
…“What a Man”…
I should also talk about Alan’s Plane crash on July 2, 1963 when the Mohawk 449 plane he was traveling in crash landed beside a runway during a tornado near Lake Ontario, New York. His accident and his life since is well documented in his books, articles and spoken about by many. A story that has helped so many and will continue to do so.
But I’m not going to talk about this.
I should talk about Alans role in setting up, and being the founding father of the Phoenix Society for Burns Survivors, based in Grand Rapids, Michigan. I could talk about the first World Burns Congress that the Phoenix Society for Burns Survivors held where Delwyn was invited as a guest speaker. They obviously made quite an impact on each other … leading them to the alter and an exciting new journey together.
… Yeah Alan, You’re the Man… !!
I should talk about how many awards Alan and Delwyn have received over the years including their very own award, “The Breslau Award” and “The Local Heroes Award” for the tireless work they have done for Burn Survivors Internationally…
In 2016 Alan was up against Rodney Wayne, I found this particularly funny as Alan didn’t have any hair and I have always wondered what the conversation between Rodney Wayne and Alan Breslau would have been on that night.
I’d like to talk about the time I meet Alan and the next 8 years of his and Delwyn’s life… the fond memories, banter and small talk that I had with Alan.
The first time I met Alan was him behind a piano.
I knew who he was and had heard about him… then… ‘I heard him’… Alan was a fine pianist and every time there was a piano in the room he would usually end up sitting in front of the keys.
There was a gleam in his eye as he headed in the piano’s direction, an acknowledgement that hey I’m here and it won’t be long!
My daughter, Jorja, is a burn survivor and I meet Alan and Delwyn through the children’s camps they attended here in New Zealand. Delwyn as founder and Alan as patron of the Burn Support Group Charitable Trust. Alan and Delwyn have helped so many people national and internationally through their tireless work in burn support, burn management, fundraising and giving back with their big hearts. It didn’t matter of your background or past, if you needed any help, in healing scars externally or internally these were your ‘go to’ people… “Oh and the Talking Stick!”
I was lucky enough, as president of the burn support group charitable trust to be flown to the world Burns congress in Dallas 2017 and Grand Rapids 2018, this is where I learned how much of a “Rockstar” Alan was… In Dallas we were in a room with over 1000 people and each of them had been brought there because of one man… this man however, had a fall at home 24 hours prior to flying out and had broken his collar bone unbeknown to those at congress. Everyone wanted to shake Alan’s hand. Obviously Delwyn did her best to stop people, but Alan kept putting out his hand to great old friends and make new ones in true ‘Rockstar Fashion’. Our New Zealand Contingent cringed every time someone went in for a firm handshake. Alan also played the piano during the Talent Show during this World Burns Congress with his broken collar bone.
In Dallas I also learnt how much Alan liked BBQ’d meat. We had a meal at Lockhart’s BBQ Smoke House, one of the oldest smokehouses in Dallas Texas. Not only did Alan like BBQ meat he had a passion for puddings and desserts… he really did like his sweet treats.
Alan never minced his words and didn’t beat around the bush in what he wanted to say. It didn’t matter where you were at the time… in an AGM or in a hotel corridor. If something was on his mind, he got it out. It was always a pleasure to sit down and have a chat. I wish that I had got to spend more time with him, I would have asked more questions, I really wanted to know more about Plastics and Polymers! Alan was always willing to give you the time of day for a decent discussion and chat.
I remember asking Alan why he likes wearing the dark sunglasses, his response was, it makes me look cool. He advised me one day that as he had only one working eye it can move around further and he could see more out of the corner of his eye… more than most people. A lot of people didn’t know this little party trick.
In Grand Rapids we visited the newly renovated Phoenix Society head office. On Google maps it only looked like a only a few blocks away, so being a lovely day we walked. I pushed Alan in his wheel chair and Alan kept saying, “why are you going so slow?” Wow it was like pushing Michael Schumacher in a wheelchair. Thank you, George for picking Alan and Delwyn up when we had finished our visit, so the rest of us could have a nice casual stroll back to the hotel.
Alan was more than welcoming to talk to young burn survivors and share his expertise and guidance in a way that they not only listened, but understood that everyone has a story. It was always easy to share with Alan. Myself include with my own story, with the magic help of the “Talking Stick”.
The funniest moment I’ve had with Alan and Delwyn would have been at a burns camp in Albany when Delwyn, in true Delwyn style, came out and said, “I don’t want to alarm anyone, but has anyone seen Alans ear?” Alan has lost his ear! This is something you don’t hear every day – excuse the pun – and I probably would never hear again – pun intended!
There have been so many messages on social media and the out pouring of loss of Alan’s life and the love to Delwyn. What people on Social media have been saying about Alan really reflects himself and his personality and we can all relate here are just a few.
A legend.
A truly amazing man.
A man who truly made a difference.
A golden heart stopped beating.
Inspired many for strength and healing.
A Life fully lived.
A true legacy and inspiration.
He made a difference.
A victor of circumstances.
This man leaves a lasting impact on us all.
….”What a Man”….
Carol Mayer
The Burn Support Charitable Trust wishes to express our deepest condolences to the Mayer family, and to our Australian friends you have had the privilege of having met the amazing Carol Mayer.
Carol attended 2019 Women’s Burn Retreat where we were to meet an incredibly inspiring, courageous woman who was as real as they come, with a desire and yearn to support, educate and care for burn survivors within the community.
Carol will always be remembered for her smile, her generous heart and the ability to make everyone feel beautiful.
R.I.P CAROL, you’ll always be in our hearts….
Thank you to the family of Georgena Frances Moran
In October 2020 a very kind and generous legacy was donated to the Burn Support Charitable Trust.
This large donation enables the events in place to continue and gives opportunity to expand on new projects.
June 2020
After many years, The Burn Support Group Charitable Trust has received notification that our dedicated, wonderful, Jan Steele has resigned as a Board member and Trustee of the BSGCT.
Although, now not technically holding a role, Jan will always be a part of our whanau.
Her devotion to the BSGCT began in 1988 and during her very long tenure with the Charity she held such roles as Vice President, Trustee, Minutes Secretary and Treasurer.
For over 30 years she has dedicated her time to supporting burn survivors in New Zealand, affecting countless lives in the process.
There is no doubt that the impact she made has had a permanent impact on the Charity, and we are so very fortunate to have had someone with that love and dedication.
The Burn Support Group’s success today is a direct result of Jan’s hard work and commitment to burn survivor support.
Our sincerest thanks to you, Jan.
Nick Nielson
President
Former burns nurse reflects on more than 33 years on the job
18 June 2019 | Techniques for nursing burns patients have changed dramatically in the years since Jan Steele first started working at Middlemore Hospital.
Ms Steele, who recently retired from her role as a nurse at the Auckland Regional and National Burns service after 33 and a half years, says patients used to be bathed daily in lux flakes.
“Then it went to baby shampoo, then salt, and then Dermaveen which created a bath that looked like porridge,” she says.
In earlier times, these baths occurred with some pain relief for patients but not with the attendance of an anaesthetist. In those days up to three staff were required to assist in the process. Ms Steele remembers the first time an anaesthetist was called before a patient was bathed.
“We booked the anaesthetist in. He was a lovely man. He said he’d be there at a set time and would expect a coffee, a donut and a chocolate fish. He just about fell over when he arrived and was presented with exactly that,” she says, adding the team provided said refreshments every time the anaesthetist attended the unit from then on.
Wound care products have improved since that time – and patients thankfully undergo fewer dressing changes and baths.
Reflecting over her years at the service which treats the most severe burns in the country, Ms Steele says it was a privilege to work with the patients.
“Looking back, you share the journey with the patient. When they have a good day, you have a good day. They come into hospital and you don’t know them from a bar of soap. They trust us with their life.”
She acknowledges it takes a special kind of person to work with people who are in such a vulnerable time of their lives.
“We’ve got to know when to display empathy and sympathy, but at the same time they’ve got to be rehabilitated. Rehabilitation begins from the time of their injury and involves surgeons, nurses and physiotherapists, but ultimately it is the patient who determines the end result,’ she says.
Factors such as wearing pressure garments and splints, doing prescribed exercises, and keeping skin moisturised are all important and sometimes patients need to be pushed to persist with physiotherapy, even when it is uncomfortable.
“It really is a case of being cruel to be kind.”
Ms Steele says she treated all patients equally, regardless of the seriousness of their burns. It has been rewarding seeing former inpatients return to the service for various appointments.
“On my last day a patient that I had nursed years before came back to the unit and donated a computer for the dayroom in appreciation of the care I gave him and other patients. That was very humbling for me,” she says.
Now enjoying a slower paced life with her husband in the Coromandel, Ms Steel says she couldn’t have asked for a better working place.
“It is a wonderful place. You can make such a difference.”
Pete Sharp
August 2019 | It is with regret Pete Sharp has had to resign from the Board.
Pete has been a fabulous President for the past two years and all of us connected to the Burn Support Group wish him all the very best in his future endeavors.
Pete has been instrumental in the Charity moving ahead with his great leadership qualities, his ability to connect with the burn community and his invaluable input to all new and exciting initiatives.
From all of us that have the privilege of working alongside you, you will be greatly missed…
Toni MacLeod
Burn Support Group offers condolences to Toni MacLeod (pictured right) who’s husband, Harold MacLeod (commonly known as Mac), sadly passed away on 7 March 2018.
Toni has always been extremely supportive of the Burn Support Group, offering her services wherever necessary.
Thank you, Toni, for everything you do and our thoughts go out to you at this time.
George Stephen
The Burn Support Charitable Trust would like to offer our deepest condolscenses to George Stephens‘ family. George passed away on 6 November 2017.
George held the position of President and Trustee from 2010 until his resignation in 2013.
George was extremely well respected and held in high esteem by all those that came into contact with him.
RIP George.
Rosemary Barling
We would like to extend our well wishes to Rosemary Barling for her exciting new future with her family down Nelson.
Rosemary has been part of the Burn Support Group since 1993, joining as a Board Member, until her role as Secretary of the Minutes.
Thank you for your dedication and support, Rosemary, you will be fondly missed.
Resources
There are many ways that you can get a burn
In Memoriam – Doreen Akrigg
Fifth April 2024, saw the passing of one very dear and longstanding fundraiser, and supporter of our charity, 96 year old, Doreen Akrigg.
When her then 8 year old grandson, Ben Cotton was burned in 1988, Doreen took it upon herself to organise regular ‘Knit and Natter’ groups in her home, and held knitting stalls with burn survivor, Helen Hall, at Middlemore Hospital and outside supermarkets all around Auckland.
She held these stalls for many years which raised many thousands of dollars for us.
Her staunch dedication and passion became instrumental in giving our charity the solid financial foundation it has today, and for this we will be forever grateful.
Rest in Peace dear Doreen, your efforts for the Burn Support Group Charitable Trust will never be forgotten.
Farewell – Jim Kayes
Best wishes, and our deepest appreciation of your tremendous support
Sadly, we farewell Jim Kayes as the Charity Ambassador for the past 5 years.Jim has volunteered his time, skills, personality and wonderful character for many events over the years. The Charity has been extremely fortunate to have Jim host, share his story, create much laughter and guest speak at the Children’s Camps, Survivor Sundays and fundraisers…
After some reflection Jim had to come to the decision that his life is busy, as a father of two, a high profile personality, something had to give. The Burn Support Group wishes to acknowledge all that Jim has contributed. As a Charity we feel privileged that you have supported above and beyond the burn survivor community during your time.
It has been a pleasure to meet you, hear your stories and it is contagious to be around your positive attitude.
On behalf of the Burn Support Charitable Trust, we wish Jim and his family all the very best for the future and his further endeavours.
Thank you to Linda
The Burn Support Charitable Trust wishes to acknowledge and express our deepest appreciation to Linda Legge, Clinical Nurse Specialist at Kidz First Hospital, for the past 15 years working with burn survivors from throughout New Zealand.
Linda spent 37 years working for Counties as a dedicated nurse alongside her peers. For the past 7 years Linda has been a great support towards the Charity involved in many of the initiatives provided to Kidz First that will benefit and enhance rehabilitation during the hospital stay.
Linda’s input has been invaluable and we thank you sincerely for your time and contribution.
Linda has resigned from her role, earning well deserved time with her family,
From the Trustees, Board Members and staff at Burn Support Group we wish you all the best for your future endeavours and what life has in store for you!
Kerrie Rutherford
It is with great regret and sadness that we accept the resignation of our Board Member, Trustee and Treasurer, Kerrie Rutherford.
We have been the fortunate recipient of Kerrie’s expertise, not only as an ‘Office Volunteer’ (2016), but also when she subsequently utilised her well honed financial and business skills, using them to the max in her later roles within our charity, totally upgrading and revamping our recording systems.
Kerrie not only devoted untold hours in doing this, but her professionalism has also been greatly appreciated in designing the graphics for our special events, plus voluntarily supporting Michele at our last two annual Women’s Retreats.
Her wealth of skills, combined with her compassion and empathy for our burn survivors has been invaluable in assisting us provide a high continuum of care for the special needs of those within our charity.
We will miss you so much Kerrie, but totally understand your current commitments and wish only the very best for you and your future endeavours.
Thank you again from the bottom of our hearts.
Thank you, Bert (May 2021)
The Burn Support Charitable Trust wishes to acknowledge and thank Mr Albert Alfred Chant (known as Bert) for his generous and kind bequest left to contribute and support the Burn Community throughout New Zealand.
Our sincere appreciation to the extended family for this wonderful gesture and thoughtfulness.
Alan Jeffry Breslau
This year saw the passing of a true gentleman.
On behalf of the Burn Support Charitable Trust we remember, with much fondness and appreciation, the wonderful dignified, witty, charming, passionate, dedicated life that we have all had the privilege to share with Alan Breslau.
Words alone cannot express the extensive journey Alan has shared globally, touching the lives and hearts of so many fortunate people.
Alan’s talents, pioneer foresight with compassion and empathy shall never be forgotten, his well deserved accolades and awards always the reminder of this beautiful man’s achievements.
Alan will be missed by many, but remembered by all.
Burn Support Group Charitable Trust NZ.
We are deeply saddened to share that our founder, leader, encourager, and friend Alan Breslau passed away on 26 November 2020.
Alan was deeply loved by the burn community. His strong dedication, long term commitment, and unwavering desire to help others made him truly one of a kind.
Alan built the opportunity for the survivors around the world to connect, find healing, and learn to survive and thrive again.
Please keep Delwyn Breslau and their family in your thoughts at this time.
Phoenix Society Team/ USA, Amy Acton
Tribute to Alan
…“What a Man”…
I could talk about how Alan was born in New York and that he graduated in Music, Arts and Chemical engineering while specializing in Plastic’s … but I won’t… Alan would have hated that word… “WONT”
…“What a Man”…
I could also talk about how Alan was the Technical director of two very large plastic’s company’s in New York and Hong Kong and that he had written many chapters for books and resource papers in regards to polymers, plastic’s and resins and that he had also written and published two of his own books on his life experiences from the time of his plane crash, good, bad, and indifferent… But I’m not going to.
…“What a Man”…
I should also talk about Alan’s Plane crash on July 2, 1963 when the Mohawk 449 plane he was traveling in crash landed beside a runway during a tornado near Lake Ontario, New York. His accident and his life since is well documented in his books, articles and spoken about by many. A story that has helped so many and will continue to do so.
But I’m not going to talk about this.
I should talk about Alans role in setting up, and being the founding father of the Phoenix Society for Burns Survivors, based in Grand Rapids, Michigan. I could talk about the first World Burns Congress that the Phoenix Society for Burns Survivors held where Delwyn was invited as a guest speaker. They obviously made quite an impact on each other … leading them to the alter and an exciting new journey together.
… Yeah Alan, You’re the Man… !!
I should talk about how many awards Alan and Delwyn have received over the years including their very own award, “The Breslau Award” and “The Local Heroes Award” for the tireless work they have done for Burn Survivors Internationally…
In 2016 Alan was up against Rodney Wayne, I found this particularly funny as Alan didn’t have any hair and I have always wondered what the conversation between Rodney Wayne and Alan Breslau would have been on that night.
I’d like to talk about the time I meet Alan and the next 8 years of his and Delwyn’s life… the fond memories, banter and small talk that I had with Alan.
The first time I met Alan was him behind a piano.
I knew who he was and had heard about him… then… ‘I heard him’… Alan was a fine pianist and every time there was a piano in the room he would usually end up sitting in front of the keys.
There was a gleam in his eye as he headed in the piano’s direction, an acknowledgement that hey I’m here and it won’t be long!
My daughter, Jorja, is a burn survivor and I meet Alan and Delwyn through the children’s camps they attended here in New Zealand. Delwyn as founder and Alan as patron of the Burn Support Group Charitable Trust. Alan and Delwyn have helped so many people national and internationally through their tireless work in burn support, burn management, fundraising and giving back with their big hearts. It didn’t matter of your background or past, if you needed any help, in healing scars externally or internally these were your ‘go to’ people… “Oh and the Talking Stick!”
I was lucky enough, as president of the burn support group charitable trust to be flown to the world Burns congress in Dallas 2017 and Grand Rapids 2018, this is where I learned how much of a “Rockstar” Alan was… In Dallas we were in a room with over 1000 people and each of them had been brought there because of one man… this man however, had a fall at home 24 hours prior to flying out and had broken his collar bone unbeknown to those at congress. Everyone wanted to shake Alan’s hand. Obviously Delwyn did her best to stop people, but Alan kept putting out his hand to great old friends and make new ones in true ‘Rockstar Fashion’. Our New Zealand Contingent cringed every time someone went in for a firm handshake. Alan also played the piano during the Talent Show during this World Burns Congress with his broken collar bone.
In Dallas I also learnt how much Alan liked BBQ’d meat. We had a meal at Lockhart’s BBQ Smoke House, one of the oldest smokehouses in Dallas Texas. Not only did Alan like BBQ meat he had a passion for puddings and desserts… he really did like his sweet treats.
Alan never minced his words and didn’t beat around the bush in what he wanted to say. It didn’t matter where you were at the time… in an AGM or in a hotel corridor. If something was on his mind, he got it out. It was always a pleasure to sit down and have a chat. I wish that I had got to spend more time with him, I would have asked more questions, I really wanted to know more about Plastics and Polymers! Alan was always willing to give you the time of day for a decent discussion and chat.
I remember asking Alan why he likes wearing the dark sunglasses, his response was, it makes me look cool. He advised me one day that as he had only one working eye it can move around further and he could see more out of the corner of his eye… more than most people. A lot of people didn’t know this little party trick.
In Grand Rapids we visited the newly renovated Phoenix Society head office. On Google maps it only looked like a only a few blocks away, so being a lovely day we walked. I pushed Alan in his wheel chair and Alan kept saying, “why are you going so slow?” Wow it was like pushing Michael Schumacher in a wheelchair. Thank you, George for picking Alan and Delwyn up when we had finished our visit, so the rest of us could have a nice casual stroll back to the hotel.
Alan was more than welcoming to talk to young burn survivors and share his expertise and guidance in a way that they not only listened, but understood that everyone has a story. It was always easy to share with Alan. Myself include with my own story, with the magic help of the “Talking Stick”.
The funniest moment I’ve had with Alan and Delwyn would have been at a burns camp in Albany when Delwyn, in true Delwyn style, came out and said, “I don’t want to alarm anyone, but has anyone seen Alans ear?” Alan has lost his ear! This is something you don’t hear every day – excuse the pun – and I probably would never hear again – pun intended!
There have been so many messages on social media and the out pouring of loss of Alan’s life and the love to Delwyn. What people on Social media have been saying about Alan really reflects himself and his personality and we can all relate here are just a few.
A legend.
A truly amazing man.
A man who truly made a difference.
A golden heart stopped beating.
Inspired many for strength and healing.
A Life fully lived.
A true legacy and inspiration.
He made a difference.
A victor of circumstances.
This man leaves a lasting impact on us all.
….”What a Man”….
Carol Mayer
The Burn Support Charitable Trust wishes to express our deepest condolences to the Mayer family, and to our Australian friends you have had the privilege of having met the amazing Carol Mayer.
Carol attended 2019 Women’s Burn Retreat where we were to meet an incredibly inspiring, courageous woman who was as real as they come, with a desire and yearn to support, educate and care for burn survivors within the community.
Carol will always be remembered for her smile, her generous heart and the ability to make everyone feel beautiful.
R.I.P CAROL, you’ll always be in our hearts….
Thank you to the family of Georgena Frances Moran
In October 2020 a very kind and generous legacy was donated to the Burn Support Charitable Trust.
This large donation enables the events in place to continue and gives opportunity to expand on new projects.
June 2020
After many years, The Burn Support Group Charitable Trust has received notification that our dedicated, wonderful, Jan Steele has resigned as a Board member and Trustee of the BSGCT.
Although, now not technically holding a role, Jan will always be a part of our whanau.
Her devotion to the BSGCT began in 1988 and during her very long tenure with the Charity she held such roles as Vice President, Trustee, Minutes Secretary and Treasurer.
For over 30 years she has dedicated her time to supporting burn survivors in New Zealand, affecting countless lives in the process.
There is no doubt that the impact she made has had a permanent impact on the Charity, and we are so very fortunate to have had someone with that love and dedication.
The Burn Support Group’s success today is a direct result of Jan’s hard work and commitment to burn survivor support.
Our sincerest thanks to you, Jan.
Nick Nielson
President
Former burns nurse reflects on more than 33 years on the job
18 June 2019 | Techniques for nursing burns patients have changed dramatically in the years since Jan Steele first started working at Middlemore Hospital.
Ms Steele, who recently retired from her role as a nurse at the Auckland Regional and National Burns service after 33 and a half years, says patients used to be bathed daily in lux flakes.
“Then it went to baby shampoo, then salt, and then Dermaveen which created a bath that looked like porridge,” she says.
In earlier times, these baths occurred with some pain relief for patients but not with the attendance of an anaesthetist. In those days up to three staff were required to assist in the process. Ms Steele remembers the first time an anaesthetist was called before a patient was bathed.
“We booked the anaesthetist in. He was a lovely man. He said he’d be there at a set time and would expect a coffee, a donut and a chocolate fish. He just about fell over when he arrived and was presented with exactly that,” she says, adding the team provided said refreshments every time the anaesthetist attended the unit from then on.
Wound care products have improved since that time – and patients thankfully undergo fewer dressing changes and baths.
Reflecting over her years at the service which treats the most severe burns in the country, Ms Steele says it was a privilege to work with the patients.
“Looking back, you share the journey with the patient. When they have a good day, you have a good day. They come into hospital and you don’t know them from a bar of soap. They trust us with their life.”
She acknowledges it takes a special kind of person to work with people who are in such a vulnerable time of their lives.
“We’ve got to know when to display empathy and sympathy, but at the same time they’ve got to be rehabilitated. Rehabilitation begins from the time of their injury and involves surgeons, nurses and physiotherapists, but ultimately it is the patient who determines the end result,’ she says.
Factors such as wearing pressure garments and splints, doing prescribed exercises, and keeping skin moisturised are all important and sometimes patients need to be pushed to persist with physiotherapy, even when it is uncomfortable.
“It really is a case of being cruel to be kind.”
Ms Steele says she treated all patients equally, regardless of the seriousness of their burns. It has been rewarding seeing former inpatients return to the service for various appointments.
“On my last day a patient that I had nursed years before came back to the unit and donated a computer for the dayroom in appreciation of the care I gave him and other patients. That was very humbling for me,” she says.
Now enjoying a slower paced life with her husband in the Coromandel, Ms Steel says she couldn’t have asked for a better working place.
“It is a wonderful place. You can make such a difference.”
Pete Sharp
August 2019 | It is with regret Pete Sharp has had to resign from the Board.
Pete has been a fabulous President for the past two years and all of us connected to the Burn Support Group wish him all the very best in his future endeavors.
Pete has been instrumental in the Charity moving ahead with his great leadership qualities, his ability to connect with the burn community and his invaluable input to all new and exciting initiatives.
From all of us that have the privilege of working alongside you, you will be greatly missed…
Toni MacLeod
Burn Support Group offers condolences to Toni MacLeod (pictured right) who’s husband, Harold MacLeod (commonly known as Mac), sadly passed away on 7 March 2018.
Toni has always been extremely supportive of the Burn Support Group, offering her services wherever necessary.
Thank you, Toni, for everything you do and our thoughts go out to you at this time.
George Stephen
The Burn Support Charitable Trust would like to offer our deepest condolscenses to George Stephens‘ family. George passed away on 6 November 2017.
George held the position of President and Trustee from 2010 until his resignation in 2013.
George was extremely well respected and held in high esteem by all those that came into contact with him.
RIP George.
Rosemary Barling
We would like to extend our well wishes to Rosemary Barling for her exciting new future with her family down Nelson.
Rosemary has been part of the Burn Support Group since 1993, joining as a Board Member, until her role as Secretary of the Minutes.
Thank you for your dedication and support, Rosemary, you will be fondly missed.
Events & Camps
There are many ways that you can get a burn
Events
There are many ways that you can get a burn
In Memoriam – Doreen Akrigg
Fifth April 2024, saw the passing of one very dear and longstanding fundraiser, and supporter of our charity, 96 year old, Doreen Akrigg.
When her then 8 year old grandson, Ben Cotton was burned in 1988, Doreen took it upon herself to organise regular ‘Knit and Natter’ groups in her home, and held knitting stalls with burn survivor, Helen Hall, at Middlemore Hospital and outside supermarkets all around Auckland.
She held these stalls for many years which raised many thousands of dollars for us.
Her staunch dedication and passion became instrumental in giving our charity the solid financial foundation it has today, and for this we will be forever grateful.
Rest in Peace dear Doreen, your efforts for the Burn Support Group Charitable Trust will never be forgotten.
Farewell – Jim Kayes
Best wishes, and our deepest appreciation of your tremendous support
Sadly, we farewell Jim Kayes as the Charity Ambassador for the past 5 years.Jim has volunteered his time, skills, personality and wonderful character for many events over the years. The Charity has been extremely fortunate to have Jim host, share his story, create much laughter and guest speak at the Children’s Camps, Survivor Sundays and fundraisers…
After some reflection Jim had to come to the decision that his life is busy, as a father of two, a high profile personality, something had to give. The Burn Support Group wishes to acknowledge all that Jim has contributed. As a Charity we feel privileged that you have supported above and beyond the burn survivor community during your time.
It has been a pleasure to meet you, hear your stories and it is contagious to be around your positive attitude.
On behalf of the Burn Support Charitable Trust, we wish Jim and his family all the very best for the future and his further endeavours.
Thank you to Linda
The Burn Support Charitable Trust wishes to acknowledge and express our deepest appreciation to Linda Legge, Clinical Nurse Specialist at Kidz First Hospital, for the past 15 years working with burn survivors from throughout New Zealand.
Linda spent 37 years working for Counties as a dedicated nurse alongside her peers. For the past 7 years Linda has been a great support towards the Charity involved in many of the initiatives provided to Kidz First that will benefit and enhance rehabilitation during the hospital stay.
Linda’s input has been invaluable and we thank you sincerely for your time and contribution.
Linda has resigned from her role, earning well deserved time with her family,
From the Trustees, Board Members and staff at Burn Support Group we wish you all the best for your future endeavours and what life has in store for you!
Kerrie Rutherford
It is with great regret and sadness that we accept the resignation of our Board Member, Trustee and Treasurer, Kerrie Rutherford.
We have been the fortunate recipient of Kerrie’s expertise, not only as an ‘Office Volunteer’ (2016), but also when she subsequently utilised her well honed financial and business skills, using them to the max in her later roles within our charity, totally upgrading and revamping our recording systems.
Kerrie not only devoted untold hours in doing this, but her professionalism has also been greatly appreciated in designing the graphics for our special events, plus voluntarily supporting Michele at our last two annual Women’s Retreats.
Her wealth of skills, combined with her compassion and empathy for our burn survivors has been invaluable in assisting us provide a high continuum of care for the special needs of those within our charity.
We will miss you so much Kerrie, but totally understand your current commitments and wish only the very best for you and your future endeavours.
Thank you again from the bottom of our hearts.
Thank you, Bert (May 2021)
The Burn Support Charitable Trust wishes to acknowledge and thank Mr Albert Alfred Chant (known as Bert) for his generous and kind bequest left to contribute and support the Burn Community throughout New Zealand.
Our sincere appreciation to the extended family for this wonderful gesture and thoughtfulness.
Alan Jeffry Breslau
This year saw the passing of a true gentleman.
On behalf of the Burn Support Charitable Trust we remember, with much fondness and appreciation, the wonderful dignified, witty, charming, passionate, dedicated life that we have all had the privilege to share with Alan Breslau.
Words alone cannot express the extensive journey Alan has shared globally, touching the lives and hearts of so many fortunate people.
Alan’s talents, pioneer foresight with compassion and empathy shall never be forgotten, his well deserved accolades and awards always the reminder of this beautiful man’s achievements.
Alan will be missed by many, but remembered by all.
Burn Support Group Charitable Trust NZ.
We are deeply saddened to share that our founder, leader, encourager, and friend Alan Breslau passed away on 26 November 2020.
Alan was deeply loved by the burn community. His strong dedication, long term commitment, and unwavering desire to help others made him truly one of a kind.
Alan built the opportunity for the survivors around the world to connect, find healing, and learn to survive and thrive again.
Please keep Delwyn Breslau and their family in your thoughts at this time.
Phoenix Society Team/ USA, Amy Acton
Tribute to Alan
…“What a Man”…
I could talk about how Alan was born in New York and that he graduated in Music, Arts and Chemical engineering while specializing in Plastic’s … but I won’t… Alan would have hated that word… “WONT”
…“What a Man”…
I could also talk about how Alan was the Technical director of two very large plastic’s company’s in New York and Hong Kong and that he had written many chapters for books and resource papers in regards to polymers, plastic’s and resins and that he had also written and published two of his own books on his life experiences from the time of his plane crash, good, bad, and indifferent… But I’m not going to.
…“What a Man”…
I should also talk about Alan’s Plane crash on July 2, 1963 when the Mohawk 449 plane he was traveling in crash landed beside a runway during a tornado near Lake Ontario, New York. His accident and his life since is well documented in his books, articles and spoken about by many. A story that has helped so many and will continue to do so.
But I’m not going to talk about this.
I should talk about Alans role in setting up, and being the founding father of the Phoenix Society for Burns Survivors, based in Grand Rapids, Michigan. I could talk about the first World Burns Congress that the Phoenix Society for Burns Survivors held where Delwyn was invited as a guest speaker. They obviously made quite an impact on each other … leading them to the alter and an exciting new journey together.
… Yeah Alan, You’re the Man… !!
I should talk about how many awards Alan and Delwyn have received over the years including their very own award, “The Breslau Award” and “The Local Heroes Award” for the tireless work they have done for Burn Survivors Internationally…
In 2016 Alan was up against Rodney Wayne, I found this particularly funny as Alan didn’t have any hair and I have always wondered what the conversation between Rodney Wayne and Alan Breslau would have been on that night.
I’d like to talk about the time I meet Alan and the next 8 years of his and Delwyn’s life… the fond memories, banter and small talk that I had with Alan.
The first time I met Alan was him behind a piano.
I knew who he was and had heard about him… then… ‘I heard him’… Alan was a fine pianist and every time there was a piano in the room he would usually end up sitting in front of the keys.
There was a gleam in his eye as he headed in the piano’s direction, an acknowledgement that hey I’m here and it won’t be long!
My daughter, Jorja, is a burn survivor and I meet Alan and Delwyn through the children’s camps they attended here in New Zealand. Delwyn as founder and Alan as patron of the Burn Support Group Charitable Trust. Alan and Delwyn have helped so many people national and internationally through their tireless work in burn support, burn management, fundraising and giving back with their big hearts. It didn’t matter of your background or past, if you needed any help, in healing scars externally or internally these were your ‘go to’ people… “Oh and the Talking Stick!”
I was lucky enough, as president of the burn support group charitable trust to be flown to the world Burns congress in Dallas 2017 and Grand Rapids 2018, this is where I learned how much of a “Rockstar” Alan was… In Dallas we were in a room with over 1000 people and each of them had been brought there because of one man… this man however, had a fall at home 24 hours prior to flying out and had broken his collar bone unbeknown to those at congress. Everyone wanted to shake Alan’s hand. Obviously Delwyn did her best to stop people, but Alan kept putting out his hand to great old friends and make new ones in true ‘Rockstar Fashion’. Our New Zealand Contingent cringed every time someone went in for a firm handshake. Alan also played the piano during the Talent Show during this World Burns Congress with his broken collar bone.
In Dallas I also learnt how much Alan liked BBQ’d meat. We had a meal at Lockhart’s BBQ Smoke House, one of the oldest smokehouses in Dallas Texas. Not only did Alan like BBQ meat he had a passion for puddings and desserts… he really did like his sweet treats.
Alan never minced his words and didn’t beat around the bush in what he wanted to say. It didn’t matter where you were at the time… in an AGM or in a hotel corridor. If something was on his mind, he got it out. It was always a pleasure to sit down and have a chat. I wish that I had got to spend more time with him, I would have asked more questions, I really wanted to know more about Plastics and Polymers! Alan was always willing to give you the time of day for a decent discussion and chat.
I remember asking Alan why he likes wearing the dark sunglasses, his response was, it makes me look cool. He advised me one day that as he had only one working eye it can move around further and he could see more out of the corner of his eye… more than most people. A lot of people didn’t know this little party trick.
In Grand Rapids we visited the newly renovated Phoenix Society head office. On Google maps it only looked like a only a few blocks away, so being a lovely day we walked. I pushed Alan in his wheel chair and Alan kept saying, “why are you going so slow?” Wow it was like pushing Michael Schumacher in a wheelchair. Thank you, George for picking Alan and Delwyn up when we had finished our visit, so the rest of us could have a nice casual stroll back to the hotel.
Alan was more than welcoming to talk to young burn survivors and share his expertise and guidance in a way that they not only listened, but understood that everyone has a story. It was always easy to share with Alan. Myself include with my own story, with the magic help of the “Talking Stick”.
The funniest moment I’ve had with Alan and Delwyn would have been at a burns camp in Albany when Delwyn, in true Delwyn style, came out and said, “I don’t want to alarm anyone, but has anyone seen Alans ear?” Alan has lost his ear! This is something you don’t hear every day – excuse the pun – and I probably would never hear again – pun intended!
There have been so many messages on social media and the out pouring of loss of Alan’s life and the love to Delwyn. What people on Social media have been saying about Alan really reflects himself and his personality and we can all relate here are just a few.
A legend.
A truly amazing man.
A man who truly made a difference.
A golden heart stopped beating.
Inspired many for strength and healing.
A Life fully lived.
A true legacy and inspiration.
He made a difference.
A victor of circumstances.
This man leaves a lasting impact on us all.
….”What a Man”….
Carol Mayer
The Burn Support Charitable Trust wishes to express our deepest condolences to the Mayer family, and to our Australian friends you have had the privilege of having met the amazing Carol Mayer.
Carol attended 2019 Women’s Burn Retreat where we were to meet an incredibly inspiring, courageous woman who was as real as they come, with a desire and yearn to support, educate and care for burn survivors within the community.
Carol will always be remembered for her smile, her generous heart and the ability to make everyone feel beautiful.
R.I.P CAROL, you’ll always be in our hearts….
Thank you to the family of Georgena Frances Moran
In October 2020 a very kind and generous legacy was donated to the Burn Support Charitable Trust.
This large donation enables the events in place to continue and gives opportunity to expand on new projects.
June 2020
After many years, The Burn Support Group Charitable Trust has received notification that our dedicated, wonderful, Jan Steele has resigned as a Board member and Trustee of the BSGCT.
Although, now not technically holding a role, Jan will always be a part of our whanau.
Her devotion to the BSGCT began in 1988 and during her very long tenure with the Charity she held such roles as Vice President, Trustee, Minutes Secretary and Treasurer.
For over 30 years she has dedicated her time to supporting burn survivors in New Zealand, affecting countless lives in the process.
There is no doubt that the impact she made has had a permanent impact on the Charity, and we are so very fortunate to have had someone with that love and dedication.
The Burn Support Group’s success today is a direct result of Jan’s hard work and commitment to burn survivor support.
Our sincerest thanks to you, Jan.
Nick Nielson
President
Former burns nurse reflects on more than 33 years on the job
18 June 2019 | Techniques for nursing burns patients have changed dramatically in the years since Jan Steele first started working at Middlemore Hospital.
Ms Steele, who recently retired from her role as a nurse at the Auckland Regional and National Burns service after 33 and a half years, says patients used to be bathed daily in lux flakes.
“Then it went to baby shampoo, then salt, and then Dermaveen which created a bath that looked like porridge,” she says.
In earlier times, these baths occurred with some pain relief for patients but not with the attendance of an anaesthetist. In those days up to three staff were required to assist in the process. Ms Steele remembers the first time an anaesthetist was called before a patient was bathed.
“We booked the anaesthetist in. He was a lovely man. He said he’d be there at a set time and would expect a coffee, a donut and a chocolate fish. He just about fell over when he arrived and was presented with exactly that,” she says, adding the team provided said refreshments every time the anaesthetist attended the unit from then on.
Wound care products have improved since that time – and patients thankfully undergo fewer dressing changes and baths.
Reflecting over her years at the service which treats the most severe burns in the country, Ms Steele says it was a privilege to work with the patients.
“Looking back, you share the journey with the patient. When they have a good day, you have a good day. They come into hospital and you don’t know them from a bar of soap. They trust us with their life.”
She acknowledges it takes a special kind of person to work with people who are in such a vulnerable time of their lives.
“We’ve got to know when to display empathy and sympathy, but at the same time they’ve got to be rehabilitated. Rehabilitation begins from the time of their injury and involves surgeons, nurses and physiotherapists, but ultimately it is the patient who determines the end result,’ she says.
Factors such as wearing pressure garments and splints, doing prescribed exercises, and keeping skin moisturised are all important and sometimes patients need to be pushed to persist with physiotherapy, even when it is uncomfortable.
“It really is a case of being cruel to be kind.”
Ms Steele says she treated all patients equally, regardless of the seriousness of their burns. It has been rewarding seeing former inpatients return to the service for various appointments.
“On my last day a patient that I had nursed years before came back to the unit and donated a computer for the dayroom in appreciation of the care I gave him and other patients. That was very humbling for me,” she says.
Now enjoying a slower paced life with her husband in the Coromandel, Ms Steel says she couldn’t have asked for a better working place.
“It is a wonderful place. You can make such a difference.”
Pete Sharp
August 2019 | It is with regret Pete Sharp has had to resign from the Board.
Pete has been a fabulous President for the past two years and all of us connected to the Burn Support Group wish him all the very best in his future endeavors.
Pete has been instrumental in the Charity moving ahead with his great leadership qualities, his ability to connect with the burn community and his invaluable input to all new and exciting initiatives.
From all of us that have the privilege of working alongside you, you will be greatly missed…
Toni MacLeod
Burn Support Group offers condolences to Toni MacLeod (pictured right) who’s husband, Harold MacLeod (commonly known as Mac), sadly passed away on 7 March 2018.
Toni has always been extremely supportive of the Burn Support Group, offering her services wherever necessary.
Thank you, Toni, for everything you do and our thoughts go out to you at this time.
George Stephen
The Burn Support Charitable Trust would like to offer our deepest condolscenses to George Stephens‘ family. George passed away on 6 November 2017.
George held the position of President and Trustee from 2010 until his resignation in 2013.
George was extremely well respected and held in high esteem by all those that came into contact with him.
RIP George.
Rosemary Barling
We would like to extend our well wishes to Rosemary Barling for her exciting new future with her family down Nelson.
Rosemary has been part of the Burn Support Group since 1993, joining as a Board Member, until her role as Secretary of the Minutes.
Thank you for your dedication and support, Rosemary, you will be fondly missed.
Upcoming Camps
There are many ways that you can get a burn
In Memoriam – Doreen Akrigg
Fifth April 2024, saw the passing of one very dear and longstanding fundraiser, and supporter of our charity, 96 year old, Doreen Akrigg.
When her then 8 year old grandson, Ben Cotton was burned in 1988, Doreen took it upon herself to organise regular ‘Knit and Natter’ groups in her home, and held knitting stalls with burn survivor, Helen Hall, at Middlemore Hospital and outside supermarkets all around Auckland.
She held these stalls for many years which raised many thousands of dollars for us.
Her staunch dedication and passion became instrumental in giving our charity the solid financial foundation it has today, and for this we will be forever grateful.
Rest in Peace dear Doreen, your efforts for the Burn Support Group Charitable Trust will never be forgotten.
Farewell – Jim Kayes
Best wishes, and our deepest appreciation of your tremendous support
Sadly, we farewell Jim Kayes as the Charity Ambassador for the past 5 years.Jim has volunteered his time, skills, personality and wonderful character for many events over the years. The Charity has been extremely fortunate to have Jim host, share his story, create much laughter and guest speak at the Children’s Camps, Survivor Sundays and fundraisers…
After some reflection Jim had to come to the decision that his life is busy, as a father of two, a high profile personality, something had to give. The Burn Support Group wishes to acknowledge all that Jim has contributed. As a Charity we feel privileged that you have supported above and beyond the burn survivor community during your time.
It has been a pleasure to meet you, hear your stories and it is contagious to be around your positive attitude.
On behalf of the Burn Support Charitable Trust, we wish Jim and his family all the very best for the future and his further endeavours.
Thank you to Linda
The Burn Support Charitable Trust wishes to acknowledge and express our deepest appreciation to Linda Legge, Clinical Nurse Specialist at Kidz First Hospital, for the past 15 years working with burn survivors from throughout New Zealand.
Linda spent 37 years working for Counties as a dedicated nurse alongside her peers. For the past 7 years Linda has been a great support towards the Charity involved in many of the initiatives provided to Kidz First that will benefit and enhance rehabilitation during the hospital stay.
Linda’s input has been invaluable and we thank you sincerely for your time and contribution.
Linda has resigned from her role, earning well deserved time with her family,
From the Trustees, Board Members and staff at Burn Support Group we wish you all the best for your future endeavours and what life has in store for you!
Kerrie Rutherford
It is with great regret and sadness that we accept the resignation of our Board Member, Trustee and Treasurer, Kerrie Rutherford.
We have been the fortunate recipient of Kerrie’s expertise, not only as an ‘Office Volunteer’ (2016), but also when she subsequently utilised her well honed financial and business skills, using them to the max in her later roles within our charity, totally upgrading and revamping our recording systems.
Kerrie not only devoted untold hours in doing this, but her professionalism has also been greatly appreciated in designing the graphics for our special events, plus voluntarily supporting Michele at our last two annual Women’s Retreats.
Her wealth of skills, combined with her compassion and empathy for our burn survivors has been invaluable in assisting us provide a high continuum of care for the special needs of those within our charity.
We will miss you so much Kerrie, but totally understand your current commitments and wish only the very best for you and your future endeavours.
Thank you again from the bottom of our hearts.
Thank you, Bert (May 2021)
The Burn Support Charitable Trust wishes to acknowledge and thank Mr Albert Alfred Chant (known as Bert) for his generous and kind bequest left to contribute and support the Burn Community throughout New Zealand.
Our sincere appreciation to the extended family for this wonderful gesture and thoughtfulness.
Alan Jeffry Breslau
This year saw the passing of a true gentleman.
On behalf of the Burn Support Charitable Trust we remember, with much fondness and appreciation, the wonderful dignified, witty, charming, passionate, dedicated life that we have all had the privilege to share with Alan Breslau.
Words alone cannot express the extensive journey Alan has shared globally, touching the lives and hearts of so many fortunate people.
Alan’s talents, pioneer foresight with compassion and empathy shall never be forgotten, his well deserved accolades and awards always the reminder of this beautiful man’s achievements.
Alan will be missed by many, but remembered by all.
Burn Support Group Charitable Trust NZ.
We are deeply saddened to share that our founder, leader, encourager, and friend Alan Breslau passed away on 26 November 2020.
Alan was deeply loved by the burn community. His strong dedication, long term commitment, and unwavering desire to help others made him truly one of a kind.
Alan built the opportunity for the survivors around the world to connect, find healing, and learn to survive and thrive again.
Please keep Delwyn Breslau and their family in your thoughts at this time.
Phoenix Society Team/ USA, Amy Acton
Tribute to Alan
…“What a Man”…
I could talk about how Alan was born in New York and that he graduated in Music, Arts and Chemical engineering while specializing in Plastic’s … but I won’t… Alan would have hated that word… “WONT”
…“What a Man”…
I could also talk about how Alan was the Technical director of two very large plastic’s company’s in New York and Hong Kong and that he had written many chapters for books and resource papers in regards to polymers, plastic’s and resins and that he had also written and published two of his own books on his life experiences from the time of his plane crash, good, bad, and indifferent… But I’m not going to.
…“What a Man”…
I should also talk about Alan’s Plane crash on July 2, 1963 when the Mohawk 449 plane he was traveling in crash landed beside a runway during a tornado near Lake Ontario, New York. His accident and his life since is well documented in his books, articles and spoken about by many. A story that has helped so many and will continue to do so.
But I’m not going to talk about this.
I should talk about Alans role in setting up, and being the founding father of the Phoenix Society for Burns Survivors, based in Grand Rapids, Michigan. I could talk about the first World Burns Congress that the Phoenix Society for Burns Survivors held where Delwyn was invited as a guest speaker. They obviously made quite an impact on each other … leading them to the alter and an exciting new journey together.
… Yeah Alan, You’re the Man… !!
I should talk about how many awards Alan and Delwyn have received over the years including their very own award, “The Breslau Award” and “The Local Heroes Award” for the tireless work they have done for Burn Survivors Internationally…
In 2016 Alan was up against Rodney Wayne, I found this particularly funny as Alan didn’t have any hair and I have always wondered what the conversation between Rodney Wayne and Alan Breslau would have been on that night.
I’d like to talk about the time I meet Alan and the next 8 years of his and Delwyn’s life… the fond memories, banter and small talk that I had with Alan.
The first time I met Alan was him behind a piano.
I knew who he was and had heard about him… then… ‘I heard him’… Alan was a fine pianist and every time there was a piano in the room he would usually end up sitting in front of the keys.
There was a gleam in his eye as he headed in the piano’s direction, an acknowledgement that hey I’m here and it won’t be long!
My daughter, Jorja, is a burn survivor and I meet Alan and Delwyn through the children’s camps they attended here in New Zealand. Delwyn as founder and Alan as patron of the Burn Support Group Charitable Trust. Alan and Delwyn have helped so many people national and internationally through their tireless work in burn support, burn management, fundraising and giving back with their big hearts. It didn’t matter of your background or past, if you needed any help, in healing scars externally or internally these were your ‘go to’ people… “Oh and the Talking Stick!”
I was lucky enough, as president of the burn support group charitable trust to be flown to the world Burns congress in Dallas 2017 and Grand Rapids 2018, this is where I learned how much of a “Rockstar” Alan was… In Dallas we were in a room with over 1000 people and each of them had been brought there because of one man… this man however, had a fall at home 24 hours prior to flying out and had broken his collar bone unbeknown to those at congress. Everyone wanted to shake Alan’s hand. Obviously Delwyn did her best to stop people, but Alan kept putting out his hand to great old friends and make new ones in true ‘Rockstar Fashion’. Our New Zealand Contingent cringed every time someone went in for a firm handshake. Alan also played the piano during the Talent Show during this World Burns Congress with his broken collar bone.
In Dallas I also learnt how much Alan liked BBQ’d meat. We had a meal at Lockhart’s BBQ Smoke House, one of the oldest smokehouses in Dallas Texas. Not only did Alan like BBQ meat he had a passion for puddings and desserts… he really did like his sweet treats.
Alan never minced his words and didn’t beat around the bush in what he wanted to say. It didn’t matter where you were at the time… in an AGM or in a hotel corridor. If something was on his mind, he got it out. It was always a pleasure to sit down and have a chat. I wish that I had got to spend more time with him, I would have asked more questions, I really wanted to know more about Plastics and Polymers! Alan was always willing to give you the time of day for a decent discussion and chat.
I remember asking Alan why he likes wearing the dark sunglasses, his response was, it makes me look cool. He advised me one day that as he had only one working eye it can move around further and he could see more out of the corner of his eye… more than most people. A lot of people didn’t know this little party trick.
In Grand Rapids we visited the newly renovated Phoenix Society head office. On Google maps it only looked like a only a few blocks away, so being a lovely day we walked. I pushed Alan in his wheel chair and Alan kept saying, “why are you going so slow?” Wow it was like pushing Michael Schumacher in a wheelchair. Thank you, George for picking Alan and Delwyn up when we had finished our visit, so the rest of us could have a nice casual stroll back to the hotel.
Alan was more than welcoming to talk to young burn survivors and share his expertise and guidance in a way that they not only listened, but understood that everyone has a story. It was always easy to share with Alan. Myself include with my own story, with the magic help of the “Talking Stick”.
The funniest moment I’ve had with Alan and Delwyn would have been at a burns camp in Albany when Delwyn, in true Delwyn style, came out and said, “I don’t want to alarm anyone, but has anyone seen Alans ear?” Alan has lost his ear! This is something you don’t hear every day – excuse the pun – and I probably would never hear again – pun intended!
There have been so many messages on social media and the out pouring of loss of Alan’s life and the love to Delwyn. What people on Social media have been saying about Alan really reflects himself and his personality and we can all relate here are just a few.
A legend.
A truly amazing man.
A man who truly made a difference.
A golden heart stopped beating.
Inspired many for strength and healing.
A Life fully lived.
A true legacy and inspiration.
He made a difference.
A victor of circumstances.
This man leaves a lasting impact on us all.
….”What a Man”….
Carol Mayer
The Burn Support Charitable Trust wishes to express our deepest condolences to the Mayer family, and to our Australian friends you have had the privilege of having met the amazing Carol Mayer.
Carol attended 2019 Women’s Burn Retreat where we were to meet an incredibly inspiring, courageous woman who was as real as they come, with a desire and yearn to support, educate and care for burn survivors within the community.
Carol will always be remembered for her smile, her generous heart and the ability to make everyone feel beautiful.
R.I.P CAROL, you’ll always be in our hearts….
Thank you to the family of Georgena Frances Moran
In October 2020 a very kind and generous legacy was donated to the Burn Support Charitable Trust.
This large donation enables the events in place to continue and gives opportunity to expand on new projects.
June 2020
After many years, The Burn Support Group Charitable Trust has received notification that our dedicated, wonderful, Jan Steele has resigned as a Board member and Trustee of the BSGCT.
Although, now not technically holding a role, Jan will always be a part of our whanau.
Her devotion to the BSGCT began in 1988 and during her very long tenure with the Charity she held such roles as Vice President, Trustee, Minutes Secretary and Treasurer.
For over 30 years she has dedicated her time to supporting burn survivors in New Zealand, affecting countless lives in the process.
There is no doubt that the impact she made has had a permanent impact on the Charity, and we are so very fortunate to have had someone with that love and dedication.
The Burn Support Group’s success today is a direct result of Jan’s hard work and commitment to burn survivor support.
Our sincerest thanks to you, Jan.
Nick Nielson
President
Former burns nurse reflects on more than 33 years on the job
18 June 2019 | Techniques for nursing burns patients have changed dramatically in the years since Jan Steele first started working at Middlemore Hospital.
Ms Steele, who recently retired from her role as a nurse at the Auckland Regional and National Burns service after 33 and a half years, says patients used to be bathed daily in lux flakes.
“Then it went to baby shampoo, then salt, and then Dermaveen which created a bath that looked like porridge,” she says.
In earlier times, these baths occurred with some pain relief for patients but not with the attendance of an anaesthetist. In those days up to three staff were required to assist in the process. Ms Steele remembers the first time an anaesthetist was called before a patient was bathed.
“We booked the anaesthetist in. He was a lovely man. He said he’d be there at a set time and would expect a coffee, a donut and a chocolate fish. He just about fell over when he arrived and was presented with exactly that,” she says, adding the team provided said refreshments every time the anaesthetist attended the unit from then on.
Wound care products have improved since that time – and patients thankfully undergo fewer dressing changes and baths.
Reflecting over her years at the service which treats the most severe burns in the country, Ms Steele says it was a privilege to work with the patients.
“Looking back, you share the journey with the patient. When they have a good day, you have a good day. They come into hospital and you don’t know them from a bar of soap. They trust us with their life.”
She acknowledges it takes a special kind of person to work with people who are in such a vulnerable time of their lives.
“We’ve got to know when to display empathy and sympathy, but at the same time they’ve got to be rehabilitated. Rehabilitation begins from the time of their injury and involves surgeons, nurses and physiotherapists, but ultimately it is the patient who determines the end result,’ she says.
Factors such as wearing pressure garments and splints, doing prescribed exercises, and keeping skin moisturised are all important and sometimes patients need to be pushed to persist with physiotherapy, even when it is uncomfortable.
“It really is a case of being cruel to be kind.”
Ms Steele says she treated all patients equally, regardless of the seriousness of their burns. It has been rewarding seeing former inpatients return to the service for various appointments.
“On my last day a patient that I had nursed years before came back to the unit and donated a computer for the dayroom in appreciation of the care I gave him and other patients. That was very humbling for me,” she says.
Now enjoying a slower paced life with her husband in the Coromandel, Ms Steel says she couldn’t have asked for a better working place.
“It is a wonderful place. You can make such a difference.”
Pete Sharp
August 2019 | It is with regret Pete Sharp has had to resign from the Board.
Pete has been a fabulous President for the past two years and all of us connected to the Burn Support Group wish him all the very best in his future endeavors.
Pete has been instrumental in the Charity moving ahead with his great leadership qualities, his ability to connect with the burn community and his invaluable input to all new and exciting initiatives.
From all of us that have the privilege of working alongside you, you will be greatly missed…
Toni MacLeod
Burn Support Group offers condolences to Toni MacLeod (pictured right) who’s husband, Harold MacLeod (commonly known as Mac), sadly passed away on 7 March 2018.
Toni has always been extremely supportive of the Burn Support Group, offering her services wherever necessary.
Thank you, Toni, for everything you do and our thoughts go out to you at this time.
George Stephen
The Burn Support Charitable Trust would like to offer our deepest condolscenses to George Stephens‘ family. George passed away on 6 November 2017.
George held the position of President and Trustee from 2010 until his resignation in 2013.
George was extremely well respected and held in high esteem by all those that came into contact with him.
RIP George.
Rosemary Barling
We would like to extend our well wishes to Rosemary Barling for her exciting new future with her family down Nelson.
Rosemary has been part of the Burn Support Group since 1993, joining as a Board Member, until her role as Secretary of the Minutes.
Thank you for your dedication and support, Rosemary, you will be fondly missed.
Womens Retreat
There are many ways that you can get a burn
In Memoriam – Doreen Akrigg
Fifth April 2024, saw the passing of one very dear and longstanding fundraiser, and supporter of our charity, 96 year old, Doreen Akrigg.
When her then 8 year old grandson, Ben Cotton was burned in 1988, Doreen took it upon herself to organise regular ‘Knit and Natter’ groups in her home, and held knitting stalls with burn survivor, Helen Hall, at Middlemore Hospital and outside supermarkets all around Auckland.
She held these stalls for many years which raised many thousands of dollars for us.
Her staunch dedication and passion became instrumental in giving our charity the solid financial foundation it has today, and for this we will be forever grateful.
Rest in Peace dear Doreen, your efforts for the Burn Support Group Charitable Trust will never be forgotten.
Farewell – Jim Kayes
Best wishes, and our deepest appreciation of your tremendous support
Sadly, we farewell Jim Kayes as the Charity Ambassador for the past 5 years.Jim has volunteered his time, skills, personality and wonderful character for many events over the years. The Charity has been extremely fortunate to have Jim host, share his story, create much laughter and guest speak at the Children’s Camps, Survivor Sundays and fundraisers…
After some reflection Jim had to come to the decision that his life is busy, as a father of two, a high profile personality, something had to give. The Burn Support Group wishes to acknowledge all that Jim has contributed. As a Charity we feel privileged that you have supported above and beyond the burn survivor community during your time.
It has been a pleasure to meet you, hear your stories and it is contagious to be around your positive attitude.
On behalf of the Burn Support Charitable Trust, we wish Jim and his family all the very best for the future and his further endeavours.
Thank you to Linda
The Burn Support Charitable Trust wishes to acknowledge and express our deepest appreciation to Linda Legge, Clinical Nurse Specialist at Kidz First Hospital, for the past 15 years working with burn survivors from throughout New Zealand.
Linda spent 37 years working for Counties as a dedicated nurse alongside her peers. For the past 7 years Linda has been a great support towards the Charity involved in many of the initiatives provided to Kidz First that will benefit and enhance rehabilitation during the hospital stay.
Linda’s input has been invaluable and we thank you sincerely for your time and contribution.
Linda has resigned from her role, earning well deserved time with her family,
From the Trustees, Board Members and staff at Burn Support Group we wish you all the best for your future endeavours and what life has in store for you!
Kerrie Rutherford
It is with great regret and sadness that we accept the resignation of our Board Member, Trustee and Treasurer, Kerrie Rutherford.
We have been the fortunate recipient of Kerrie’s expertise, not only as an ‘Office Volunteer’ (2016), but also when she subsequently utilised her well honed financial and business skills, using them to the max in her later roles within our charity, totally upgrading and revamping our recording systems.
Kerrie not only devoted untold hours in doing this, but her professionalism has also been greatly appreciated in designing the graphics for our special events, plus voluntarily supporting Michele at our last two annual Women’s Retreats.
Her wealth of skills, combined with her compassion and empathy for our burn survivors has been invaluable in assisting us provide a high continuum of care for the special needs of those within our charity.
We will miss you so much Kerrie, but totally understand your current commitments and wish only the very best for you and your future endeavours.
Thank you again from the bottom of our hearts.
Thank you, Bert (May 2021)
The Burn Support Charitable Trust wishes to acknowledge and thank Mr Albert Alfred Chant (known as Bert) for his generous and kind bequest left to contribute and support the Burn Community throughout New Zealand.
Our sincere appreciation to the extended family for this wonderful gesture and thoughtfulness.
Alan Jeffry Breslau
This year saw the passing of a true gentleman.
On behalf of the Burn Support Charitable Trust we remember, with much fondness and appreciation, the wonderful dignified, witty, charming, passionate, dedicated life that we have all had the privilege to share with Alan Breslau.
Words alone cannot express the extensive journey Alan has shared globally, touching the lives and hearts of so many fortunate people.
Alan’s talents, pioneer foresight with compassion and empathy shall never be forgotten, his well deserved accolades and awards always the reminder of this beautiful man’s achievements.
Alan will be missed by many, but remembered by all.
Burn Support Group Charitable Trust NZ.
We are deeply saddened to share that our founder, leader, encourager, and friend Alan Breslau passed away on 26 November 2020.
Alan was deeply loved by the burn community. His strong dedication, long term commitment, and unwavering desire to help others made him truly one of a kind.
Alan built the opportunity for the survivors around the world to connect, find healing, and learn to survive and thrive again.
Please keep Delwyn Breslau and their family in your thoughts at this time.
Phoenix Society Team/ USA, Amy Acton
Tribute to Alan
…“What a Man”…
I could talk about how Alan was born in New York and that he graduated in Music, Arts and Chemical engineering while specializing in Plastic’s … but I won’t… Alan would have hated that word… “WONT”
…“What a Man”…
I could also talk about how Alan was the Technical director of two very large plastic’s company’s in New York and Hong Kong and that he had written many chapters for books and resource papers in regards to polymers, plastic’s and resins and that he had also written and published two of his own books on his life experiences from the time of his plane crash, good, bad, and indifferent… But I’m not going to.
…“What a Man”…
I should also talk about Alan’s Plane crash on July 2, 1963 when the Mohawk 449 plane he was traveling in crash landed beside a runway during a tornado near Lake Ontario, New York. His accident and his life since is well documented in his books, articles and spoken about by many. A story that has helped so many and will continue to do so.
But I’m not going to talk about this.
I should talk about Alans role in setting up, and being the founding father of the Phoenix Society for Burns Survivors, based in Grand Rapids, Michigan. I could talk about the first World Burns Congress that the Phoenix Society for Burns Survivors held where Delwyn was invited as a guest speaker. They obviously made quite an impact on each other … leading them to the alter and an exciting new journey together.
… Yeah Alan, You’re the Man… !!
I should talk about how many awards Alan and Delwyn have received over the years including their very own award, “The Breslau Award” and “The Local Heroes Award” for the tireless work they have done for Burn Survivors Internationally…
In 2016 Alan was up against Rodney Wayne, I found this particularly funny as Alan didn’t have any hair and I have always wondered what the conversation between Rodney Wayne and Alan Breslau would have been on that night.
I’d like to talk about the time I meet Alan and the next 8 years of his and Delwyn’s life… the fond memories, banter and small talk that I had with Alan.
The first time I met Alan was him behind a piano.
I knew who he was and had heard about him… then… ‘I heard him’… Alan was a fine pianist and every time there was a piano in the room he would usually end up sitting in front of the keys.
There was a gleam in his eye as he headed in the piano’s direction, an acknowledgement that hey I’m here and it won’t be long!
My daughter, Jorja, is a burn survivor and I meet Alan and Delwyn through the children’s camps they attended here in New Zealand. Delwyn as founder and Alan as patron of the Burn Support Group Charitable Trust. Alan and Delwyn have helped so many people national and internationally through their tireless work in burn support, burn management, fundraising and giving back with their big hearts. It didn’t matter of your background or past, if you needed any help, in healing scars externally or internally these were your ‘go to’ people… “Oh and the Talking Stick!”
I was lucky enough, as president of the burn support group charitable trust to be flown to the world Burns congress in Dallas 2017 and Grand Rapids 2018, this is where I learned how much of a “Rockstar” Alan was… In Dallas we were in a room with over 1000 people and each of them had been brought there because of one man… this man however, had a fall at home 24 hours prior to flying out and had broken his collar bone unbeknown to those at congress. Everyone wanted to shake Alan’s hand. Obviously Delwyn did her best to stop people, but Alan kept putting out his hand to great old friends and make new ones in true ‘Rockstar Fashion’. Our New Zealand Contingent cringed every time someone went in for a firm handshake. Alan also played the piano during the Talent Show during this World Burns Congress with his broken collar bone.
In Dallas I also learnt how much Alan liked BBQ’d meat. We had a meal at Lockhart’s BBQ Smoke House, one of the oldest smokehouses in Dallas Texas. Not only did Alan like BBQ meat he had a passion for puddings and desserts… he really did like his sweet treats.
Alan never minced his words and didn’t beat around the bush in what he wanted to say. It didn’t matter where you were at the time… in an AGM or in a hotel corridor. If something was on his mind, he got it out. It was always a pleasure to sit down and have a chat. I wish that I had got to spend more time with him, I would have asked more questions, I really wanted to know more about Plastics and Polymers! Alan was always willing to give you the time of day for a decent discussion and chat.
I remember asking Alan why he likes wearing the dark sunglasses, his response was, it makes me look cool. He advised me one day that as he had only one working eye it can move around further and he could see more out of the corner of his eye… more than most people. A lot of people didn’t know this little party trick.
In Grand Rapids we visited the newly renovated Phoenix Society head office. On Google maps it only looked like a only a few blocks away, so being a lovely day we walked. I pushed Alan in his wheel chair and Alan kept saying, “why are you going so slow?” Wow it was like pushing Michael Schumacher in a wheelchair. Thank you, George for picking Alan and Delwyn up when we had finished our visit, so the rest of us could have a nice casual stroll back to the hotel.
Alan was more than welcoming to talk to young burn survivors and share his expertise and guidance in a way that they not only listened, but understood that everyone has a story. It was always easy to share with Alan. Myself include with my own story, with the magic help of the “Talking Stick”.
The funniest moment I’ve had with Alan and Delwyn would have been at a burns camp in Albany when Delwyn, in true Delwyn style, came out and said, “I don’t want to alarm anyone, but has anyone seen Alans ear?” Alan has lost his ear! This is something you don’t hear every day – excuse the pun – and I probably would never hear again – pun intended!
There have been so many messages on social media and the out pouring of loss of Alan’s life and the love to Delwyn. What people on Social media have been saying about Alan really reflects himself and his personality and we can all relate here are just a few.
A legend.
A truly amazing man.
A man who truly made a difference.
A golden heart stopped beating.
Inspired many for strength and healing.
A Life fully lived.
A true legacy and inspiration.
He made a difference.
A victor of circumstances.
This man leaves a lasting impact on us all.
….”What a Man”….
Carol Mayer
The Burn Support Charitable Trust wishes to express our deepest condolences to the Mayer family, and to our Australian friends you have had the privilege of having met the amazing Carol Mayer.
Carol attended 2019 Women’s Burn Retreat where we were to meet an incredibly inspiring, courageous woman who was as real as they come, with a desire and yearn to support, educate and care for burn survivors within the community.
Carol will always be remembered for her smile, her generous heart and the ability to make everyone feel beautiful.
R.I.P CAROL, you’ll always be in our hearts….
Thank you to the family of Georgena Frances Moran
In October 2020 a very kind and generous legacy was donated to the Burn Support Charitable Trust.
This large donation enables the events in place to continue and gives opportunity to expand on new projects.
June 2020
After many years, The Burn Support Group Charitable Trust has received notification that our dedicated, wonderful, Jan Steele has resigned as a Board member and Trustee of the BSGCT.
Although, now not technically holding a role, Jan will always be a part of our whanau.
Her devotion to the BSGCT began in 1988 and during her very long tenure with the Charity she held such roles as Vice President, Trustee, Minutes Secretary and Treasurer.
For over 30 years she has dedicated her time to supporting burn survivors in New Zealand, affecting countless lives in the process.
There is no doubt that the impact she made has had a permanent impact on the Charity, and we are so very fortunate to have had someone with that love and dedication.
The Burn Support Group’s success today is a direct result of Jan’s hard work and commitment to burn survivor support.
Our sincerest thanks to you, Jan.
Nick Nielson
President
Former burns nurse reflects on more than 33 years on the job
18 June 2019 | Techniques for nursing burns patients have changed dramatically in the years since Jan Steele first started working at Middlemore Hospital.
Ms Steele, who recently retired from her role as a nurse at the Auckland Regional and National Burns service after 33 and a half years, says patients used to be bathed daily in lux flakes.
“Then it went to baby shampoo, then salt, and then Dermaveen which created a bath that looked like porridge,” she says.
In earlier times, these baths occurred with some pain relief for patients but not with the attendance of an anaesthetist. In those days up to three staff were required to assist in the process. Ms Steele remembers the first time an anaesthetist was called before a patient was bathed.
“We booked the anaesthetist in. He was a lovely man. He said he’d be there at a set time and would expect a coffee, a donut and a chocolate fish. He just about fell over when he arrived and was presented with exactly that,” she says, adding the team provided said refreshments every time the anaesthetist attended the unit from then on.
Wound care products have improved since that time – and patients thankfully undergo fewer dressing changes and baths.
Reflecting over her years at the service which treats the most severe burns in the country, Ms Steele says it was a privilege to work with the patients.
“Looking back, you share the journey with the patient. When they have a good day, you have a good day. They come into hospital and you don’t know them from a bar of soap. They trust us with their life.”
She acknowledges it takes a special kind of person to work with people who are in such a vulnerable time of their lives.
“We’ve got to know when to display empathy and sympathy, but at the same time they’ve got to be rehabilitated. Rehabilitation begins from the time of their injury and involves surgeons, nurses and physiotherapists, but ultimately it is the patient who determines the end result,’ she says.
Factors such as wearing pressure garments and splints, doing prescribed exercises, and keeping skin moisturised are all important and sometimes patients need to be pushed to persist with physiotherapy, even when it is uncomfortable.
“It really is a case of being cruel to be kind.”
Ms Steele says she treated all patients equally, regardless of the seriousness of their burns. It has been rewarding seeing former inpatients return to the service for various appointments.
“On my last day a patient that I had nursed years before came back to the unit and donated a computer for the dayroom in appreciation of the care I gave him and other patients. That was very humbling for me,” she says.
Now enjoying a slower paced life with her husband in the Coromandel, Ms Steel says she couldn’t have asked for a better working place.
“It is a wonderful place. You can make such a difference.”
Pete Sharp
August 2019 | It is with regret Pete Sharp has had to resign from the Board.
Pete has been a fabulous President for the past two years and all of us connected to the Burn Support Group wish him all the very best in his future endeavors.
Pete has been instrumental in the Charity moving ahead with his great leadership qualities, his ability to connect with the burn community and his invaluable input to all new and exciting initiatives.
From all of us that have the privilege of working alongside you, you will be greatly missed…
Toni MacLeod
Burn Support Group offers condolences to Toni MacLeod (pictured right) who’s husband, Harold MacLeod (commonly known as Mac), sadly passed away on 7 March 2018.
Toni has always been extremely supportive of the Burn Support Group, offering her services wherever necessary.
Thank you, Toni, for everything you do and our thoughts go out to you at this time.
George Stephen
The Burn Support Charitable Trust would like to offer our deepest condolscenses to George Stephens‘ family. George passed away on 6 November 2017.
George held the position of President and Trustee from 2010 until his resignation in 2013.
George was extremely well respected and held in high esteem by all those that came into contact with him.
RIP George.
Rosemary Barling
We would like to extend our well wishes to Rosemary Barling for her exciting new future with her family down Nelson.
Rosemary has been part of the Burn Support Group since 1993, joining as a Board Member, until her role as Secretary of the Minutes.
Thank you for your dedication and support, Rosemary, you will be fondly missed.
Mens Day Out
There are many ways that you can get a burn
In Memoriam – Doreen Akrigg
Fifth April 2024, saw the passing of one very dear and longstanding fundraiser, and supporter of our charity, 96 year old, Doreen Akrigg.
When her then 8 year old grandson, Ben Cotton was burned in 1988, Doreen took it upon herself to organise regular ‘Knit and Natter’ groups in her home, and held knitting stalls with burn survivor, Helen Hall, at Middlemore Hospital and outside supermarkets all around Auckland.
She held these stalls for many years which raised many thousands of dollars for us.
Her staunch dedication and passion became instrumental in giving our charity the solid financial foundation it has today, and for this we will be forever grateful.
Rest in Peace dear Doreen, your efforts for the Burn Support Group Charitable Trust will never be forgotten.
Farewell – Jim Kayes
Best wishes, and our deepest appreciation of your tremendous support
Sadly, we farewell Jim Kayes as the Charity Ambassador for the past 5 years.Jim has volunteered his time, skills, personality and wonderful character for many events over the years. The Charity has been extremely fortunate to have Jim host, share his story, create much laughter and guest speak at the Children’s Camps, Survivor Sundays and fundraisers…
After some reflection Jim had to come to the decision that his life is busy, as a father of two, a high profile personality, something had to give. The Burn Support Group wishes to acknowledge all that Jim has contributed. As a Charity we feel privileged that you have supported above and beyond the burn survivor community during your time.
It has been a pleasure to meet you, hear your stories and it is contagious to be around your positive attitude.
On behalf of the Burn Support Charitable Trust, we wish Jim and his family all the very best for the future and his further endeavours.
Thank you to Linda
The Burn Support Charitable Trust wishes to acknowledge and express our deepest appreciation to Linda Legge, Clinical Nurse Specialist at Kidz First Hospital, for the past 15 years working with burn survivors from throughout New Zealand.
Linda spent 37 years working for Counties as a dedicated nurse alongside her peers. For the past 7 years Linda has been a great support towards the Charity involved in many of the initiatives provided to Kidz First that will benefit and enhance rehabilitation during the hospital stay.
Linda’s input has been invaluable and we thank you sincerely for your time and contribution.
Linda has resigned from her role, earning well deserved time with her family,
From the Trustees, Board Members and staff at Burn Support Group we wish you all the best for your future endeavours and what life has in store for you!
Kerrie Rutherford
It is with great regret and sadness that we accept the resignation of our Board Member, Trustee and Treasurer, Kerrie Rutherford.
We have been the fortunate recipient of Kerrie’s expertise, not only as an ‘Office Volunteer’ (2016), but also when she subsequently utilised her well honed financial and business skills, using them to the max in her later roles within our charity, totally upgrading and revamping our recording systems.
Kerrie not only devoted untold hours in doing this, but her professionalism has also been greatly appreciated in designing the graphics for our special events, plus voluntarily supporting Michele at our last two annual Women’s Retreats.
Her wealth of skills, combined with her compassion and empathy for our burn survivors has been invaluable in assisting us provide a high continuum of care for the special needs of those within our charity.
We will miss you so much Kerrie, but totally understand your current commitments and wish only the very best for you and your future endeavours.
Thank you again from the bottom of our hearts.
Thank you, Bert (May 2021)
The Burn Support Charitable Trust wishes to acknowledge and thank Mr Albert Alfred Chant (known as Bert) for his generous and kind bequest left to contribute and support the Burn Community throughout New Zealand.
Our sincere appreciation to the extended family for this wonderful gesture and thoughtfulness.
Alan Jeffry Breslau
This year saw the passing of a true gentleman.
On behalf of the Burn Support Charitable Trust we remember, with much fondness and appreciation, the wonderful dignified, witty, charming, passionate, dedicated life that we have all had the privilege to share with Alan Breslau.
Words alone cannot express the extensive journey Alan has shared globally, touching the lives and hearts of so many fortunate people.
Alan’s talents, pioneer foresight with compassion and empathy shall never be forgotten, his well deserved accolades and awards always the reminder of this beautiful man’s achievements.
Alan will be missed by many, but remembered by all.
Burn Support Group Charitable Trust NZ.
We are deeply saddened to share that our founder, leader, encourager, and friend Alan Breslau passed away on 26 November 2020.
Alan was deeply loved by the burn community. His strong dedication, long term commitment, and unwavering desire to help others made him truly one of a kind.
Alan built the opportunity for the survivors around the world to connect, find healing, and learn to survive and thrive again.
Please keep Delwyn Breslau and their family in your thoughts at this time.
Phoenix Society Team/ USA, Amy Acton
Tribute to Alan
…“What a Man”…
I could talk about how Alan was born in New York and that he graduated in Music, Arts and Chemical engineering while specializing in Plastic’s … but I won’t… Alan would have hated that word… “WONT”
…“What a Man”…
I could also talk about how Alan was the Technical director of two very large plastic’s company’s in New York and Hong Kong and that he had written many chapters for books and resource papers in regards to polymers, plastic’s and resins and that he had also written and published two of his own books on his life experiences from the time of his plane crash, good, bad, and indifferent… But I’m not going to.
…“What a Man”…
I should also talk about Alan’s Plane crash on July 2, 1963 when the Mohawk 449 plane he was traveling in crash landed beside a runway during a tornado near Lake Ontario, New York. His accident and his life since is well documented in his books, articles and spoken about by many. A story that has helped so many and will continue to do so.
But I’m not going to talk about this.
I should talk about Alans role in setting up, and being the founding father of the Phoenix Society for Burns Survivors, based in Grand Rapids, Michigan. I could talk about the first World Burns Congress that the Phoenix Society for Burns Survivors held where Delwyn was invited as a guest speaker. They obviously made quite an impact on each other … leading them to the alter and an exciting new journey together.
… Yeah Alan, You’re the Man… !!
I should talk about how many awards Alan and Delwyn have received over the years including their very own award, “The Breslau Award” and “The Local Heroes Award” for the tireless work they have done for Burn Survivors Internationally…
In 2016 Alan was up against Rodney Wayne, I found this particularly funny as Alan didn’t have any hair and I have always wondered what the conversation between Rodney Wayne and Alan Breslau would have been on that night.
I’d like to talk about the time I meet Alan and the next 8 years of his and Delwyn’s life… the fond memories, banter and small talk that I had with Alan.
The first time I met Alan was him behind a piano.
I knew who he was and had heard about him… then… ‘I heard him’… Alan was a fine pianist and every time there was a piano in the room he would usually end up sitting in front of the keys.
There was a gleam in his eye as he headed in the piano’s direction, an acknowledgement that hey I’m here and it won’t be long!
My daughter, Jorja, is a burn survivor and I meet Alan and Delwyn through the children’s camps they attended here in New Zealand. Delwyn as founder and Alan as patron of the Burn Support Group Charitable Trust. Alan and Delwyn have helped so many people national and internationally through their tireless work in burn support, burn management, fundraising and giving back with their big hearts. It didn’t matter of your background or past, if you needed any help, in healing scars externally or internally these were your ‘go to’ people… “Oh and the Talking Stick!”
I was lucky enough, as president of the burn support group charitable trust to be flown to the world Burns congress in Dallas 2017 and Grand Rapids 2018, this is where I learned how much of a “Rockstar” Alan was… In Dallas we were in a room with over 1000 people and each of them had been brought there because of one man… this man however, had a fall at home 24 hours prior to flying out and had broken his collar bone unbeknown to those at congress. Everyone wanted to shake Alan’s hand. Obviously Delwyn did her best to stop people, but Alan kept putting out his hand to great old friends and make new ones in true ‘Rockstar Fashion’. Our New Zealand Contingent cringed every time someone went in for a firm handshake. Alan also played the piano during the Talent Show during this World Burns Congress with his broken collar bone.
In Dallas I also learnt how much Alan liked BBQ’d meat. We had a meal at Lockhart’s BBQ Smoke House, one of the oldest smokehouses in Dallas Texas. Not only did Alan like BBQ meat he had a passion for puddings and desserts… he really did like his sweet treats.
Alan never minced his words and didn’t beat around the bush in what he wanted to say. It didn’t matter where you were at the time… in an AGM or in a hotel corridor. If something was on his mind, he got it out. It was always a pleasure to sit down and have a chat. I wish that I had got to spend more time with him, I would have asked more questions, I really wanted to know more about Plastics and Polymers! Alan was always willing to give you the time of day for a decent discussion and chat.
I remember asking Alan why he likes wearing the dark sunglasses, his response was, it makes me look cool. He advised me one day that as he had only one working eye it can move around further and he could see more out of the corner of his eye… more than most people. A lot of people didn’t know this little party trick.
In Grand Rapids we visited the newly renovated Phoenix Society head office. On Google maps it only looked like a only a few blocks away, so being a lovely day we walked. I pushed Alan in his wheel chair and Alan kept saying, “why are you going so slow?” Wow it was like pushing Michael Schumacher in a wheelchair. Thank you, George for picking Alan and Delwyn up when we had finished our visit, so the rest of us could have a nice casual stroll back to the hotel.
Alan was more than welcoming to talk to young burn survivors and share his expertise and guidance in a way that they not only listened, but understood that everyone has a story. It was always easy to share with Alan. Myself include with my own story, with the magic help of the “Talking Stick”.
The funniest moment I’ve had with Alan and Delwyn would have been at a burns camp in Albany when Delwyn, in true Delwyn style, came out and said, “I don’t want to alarm anyone, but has anyone seen Alans ear?” Alan has lost his ear! This is something you don’t hear every day – excuse the pun – and I probably would never hear again – pun intended!
There have been so many messages on social media and the out pouring of loss of Alan’s life and the love to Delwyn. What people on Social media have been saying about Alan really reflects himself and his personality and we can all relate here are just a few.
A legend.
A truly amazing man.
A man who truly made a difference.
A golden heart stopped beating.
Inspired many for strength and healing.
A Life fully lived.
A true legacy and inspiration.
He made a difference.
A victor of circumstances.
This man leaves a lasting impact on us all.
….”What a Man”….
Carol Mayer
The Burn Support Charitable Trust wishes to express our deepest condolences to the Mayer family, and to our Australian friends you have had the privilege of having met the amazing Carol Mayer.
Carol attended 2019 Women’s Burn Retreat where we were to meet an incredibly inspiring, courageous woman who was as real as they come, with a desire and yearn to support, educate and care for burn survivors within the community.
Carol will always be remembered for her smile, her generous heart and the ability to make everyone feel beautiful.
R.I.P CAROL, you’ll always be in our hearts….
Thank you to the family of Georgena Frances Moran
In October 2020 a very kind and generous legacy was donated to the Burn Support Charitable Trust.
This large donation enables the events in place to continue and gives opportunity to expand on new projects.
June 2020
After many years, The Burn Support Group Charitable Trust has received notification that our dedicated, wonderful, Jan Steele has resigned as a Board member and Trustee of the BSGCT.
Although, now not technically holding a role, Jan will always be a part of our whanau.
Her devotion to the BSGCT began in 1988 and during her very long tenure with the Charity she held such roles as Vice President, Trustee, Minutes Secretary and Treasurer.
For over 30 years she has dedicated her time to supporting burn survivors in New Zealand, affecting countless lives in the process.
There is no doubt that the impact she made has had a permanent impact on the Charity, and we are so very fortunate to have had someone with that love and dedication.
The Burn Support Group’s success today is a direct result of Jan’s hard work and commitment to burn survivor support.
Our sincerest thanks to you, Jan.
Nick Nielson
President
Former burns nurse reflects on more than 33 years on the job
18 June 2019 | Techniques for nursing burns patients have changed dramatically in the years since Jan Steele first started working at Middlemore Hospital.
Ms Steele, who recently retired from her role as a nurse at the Auckland Regional and National Burns service after 33 and a half years, says patients used to be bathed daily in lux flakes.
“Then it went to baby shampoo, then salt, and then Dermaveen which created a bath that looked like porridge,” she says.
In earlier times, these baths occurred with some pain relief for patients but not with the attendance of an anaesthetist. In those days up to three staff were required to assist in the process. Ms Steele remembers the first time an anaesthetist was called before a patient was bathed.
“We booked the anaesthetist in. He was a lovely man. He said he’d be there at a set time and would expect a coffee, a donut and a chocolate fish. He just about fell over when he arrived and was presented with exactly that,” she says, adding the team provided said refreshments every time the anaesthetist attended the unit from then on.
Wound care products have improved since that time – and patients thankfully undergo fewer dressing changes and baths.
Reflecting over her years at the service which treats the most severe burns in the country, Ms Steele says it was a privilege to work with the patients.
“Looking back, you share the journey with the patient. When they have a good day, you have a good day. They come into hospital and you don’t know them from a bar of soap. They trust us with their life.”
She acknowledges it takes a special kind of person to work with people who are in such a vulnerable time of their lives.
“We’ve got to know when to display empathy and sympathy, but at the same time they’ve got to be rehabilitated. Rehabilitation begins from the time of their injury and involves surgeons, nurses and physiotherapists, but ultimately it is the patient who determines the end result,’ she says.
Factors such as wearing pressure garments and splints, doing prescribed exercises, and keeping skin moisturised are all important and sometimes patients need to be pushed to persist with physiotherapy, even when it is uncomfortable.
“It really is a case of being cruel to be kind.”
Ms Steele says she treated all patients equally, regardless of the seriousness of their burns. It has been rewarding seeing former inpatients return to the service for various appointments.
“On my last day a patient that I had nursed years before came back to the unit and donated a computer for the dayroom in appreciation of the care I gave him and other patients. That was very humbling for me,” she says.
Now enjoying a slower paced life with her husband in the Coromandel, Ms Steel says she couldn’t have asked for a better working place.
“It is a wonderful place. You can make such a difference.”
Pete Sharp
August 2019 | It is with regret Pete Sharp has had to resign from the Board.
Pete has been a fabulous President for the past two years and all of us connected to the Burn Support Group wish him all the very best in his future endeavors.
Pete has been instrumental in the Charity moving ahead with his great leadership qualities, his ability to connect with the burn community and his invaluable input to all new and exciting initiatives.
From all of us that have the privilege of working alongside you, you will be greatly missed…
Toni MacLeod
Burn Support Group offers condolences to Toni MacLeod (pictured right) who’s husband, Harold MacLeod (commonly known as Mac), sadly passed away on 7 March 2018.
Toni has always been extremely supportive of the Burn Support Group, offering her services wherever necessary.
Thank you, Toni, for everything you do and our thoughts go out to you at this time.
George Stephen
The Burn Support Charitable Trust would like to offer our deepest condolscenses to George Stephens‘ family. George passed away on 6 November 2017.
George held the position of President and Trustee from 2010 until his resignation in 2013.
George was extremely well respected and held in high esteem by all those that came into contact with him.
RIP George.
Rosemary Barling
We would like to extend our well wishes to Rosemary Barling for her exciting new future with her family down Nelson.
Rosemary has been part of the Burn Support Group since 1993, joining as a Board Member, until her role as Secretary of the Minutes.
Thank you for your dedication and support, Rosemary, you will be fondly missed.
Survivor Sunday
There are many ways that you can get a burn
Survivor Sunday, 30 March 2025
The Charity would like to extend our sincere gratitude to Jessica Pakura for sharing her inspiring and uplifting story. Her faith and strength throughout her burn journey resonated deeply with the attendees. Jess was warmly received by the strong gathering of 33 participants. We were also fortunate to have the Pakuranga Sailing Club as our venue. It provided a glorious setting on such a stunning day. The raffles were a hit, and the catered lunch platters from Spit Roast Catering were a delicious treat. We deeply appreciate everyone who contributes to and participates in these quarterly events. Your time and efforts are truly appreciated, and we’re extremely grateful for the support from our dedicated volunteer group.
Survivor Sunday, 15 December 2024
The Christmas Party was a resounding success, with food and festive cheer. The pools were the highlight of the day, offering endless fun for the kids and adults alike. It was a significant occasion as it marked the last Survivor Sunday for 2024 adding a meaningful note to the celebration. It was a wonderful way to gather everyone together and celebrate the season while bidding farewell to the year. Thank you to Swim A Rama, for supporting and making the day run so smoothly and to Spit Roast Catering for providing the delicious lunch. Wishing everyone a fabulous Xmas and safe holidays, look forward to catching up 2025. Thank you immensely to the amazing support given by all those attending these events throughout the year xx
Survivor Sunday, 27 October 2024
Waipuna Lodge venue was host for this educational and anticipated event. The Burn Support Group were thrilled to have the brilliant guest speaker Dr. Martha Druery, who is in New Zealand attending and presenting at the formidable ANZBA Conference. Martha is the first recipient of the Alan and Delwyn Breslau Scholarship Fund, established and created by the very generous Dr. Julian Lofts. With Martha’s visit to New Zealand the Charity took the golden opportunity for others to hear her wealth of knowledge, fabulous commitment and dedication to the burn community. Dr Martha called her presentation “Life by Design (not by default) After Trauma” and took the audience on the back roads from the trauma of burn injury to the potential for joy and post-traumatic growth. She shared her fascination for how trauma can affect every aspect of your life, how your body is designed to react in the distressing ways it sometimes does and most importantly, what we can do to override mother nature’s weird efforts to make us feel safe after trauma (and even just stress). Dr Martha is on a mission to help people understand what makes them tick (in a “not boring” way!), understand that many of the distressing things we experiences as human beings are ‘normal reactions to abnormal events’ and find ways to be kinder to ourselves so that we can live a life we love.
Survivor Sunday, 23 June 2024
Thirty four people attended the wonderful afternoon at Fisher House, Highbrook in Auckland, engaging in the story told by firefighter Lia Drew, who came from Australia to share her journey as a burn survivor sustained while on the job in home town Brisbane. Lia described the horrific circumstances she endured with an incredible and all inspiring positive outcome, as she proves burns have not determined or hindered her approach to life. On behalf of all those who attended we wish to thank Lia for making the trip and supporting the burn community in New Zealand. Following Lia was Ben Fraser from One Up Rehab Solutions. Ben is always supportive, offering his advice and knowledge with great products that are offered at a discount to burn survivors on their website. A great day was had by all, plenty of mix and mingling and warm welcomes to the newcomers. Thank you to Fisher House for your hospitality and great hosting.
Survivor Sunday, 24 March 2024 – Introducing Troy Hall
Fabulous turn out for Troy to share his story. With the fantastic host, Peter Gordon, at Homelands venue, 30 attendees were treated to delicious catering and the inspiring journey of burn survivor Troy. It was particularly special to have Troy’s mum Toni present, and the many new faces that shared in the afternoon. The Charity wishes to thank those that provided beautiful items for raffles and to those that purchased tickets on the day. These events have grown in numbers and the warmth is more than apparent as the smiles and conversations resonate around the room.
Christmas celebrations shared on a picture perfect day – Survivor Sunday, 17 December 2023
The Burn Support Charitable Trust ended the year with a fabulous sunny day shared by a large group of burn survivors and families relaxing at Cockle Bay Beach. With the amazing Auckland Jet Ski Riders providing plenty of fun and games on the water, everyone was treated to a fabulous time. It is encouraging and humbling to see the remarkable support that is shared between persons as they try new experiences, create exciting memories and establish new relationships. Lunch was provided by Spit Roast Catering. Everyone tucked into great hamburgers as they laughed and chatted on the beach. Mr Whippy finished the day as the many enjoyed ice cream before venturing home. Thank you to Miss Fox, face painter for her talents as she decorated adults and children alike. The Charity would like to thank all those that contributed to making this a splendid event and a very warm welcome to all those that attended, our familiar peoples and the new faces that are now a part of the burn family. It is truly special to unite together sharing journeys. We wish you a Very Merry Xmas, Happy New Year and a wonderful 2024 with your family and friends.
Stunning Survivor Sunday in the best location available in Auckland – 25 June 2023
First Survivor Sunday of 2023, a very exciting morning as we watched burn survivor JUDY HOHAIA leap from 13000ft, making her way down in a tandem SKY JUMP. A perfect day for such an experience, Judy couldn’t keep the smile off her face as she achieved one of her lifetime wishes. A big thank you to those that attended in support of Judy. Followed with a light lunch the lively group chatted and shared in Judy’s achievement. Burn Support Group would like to express their gratitude to all those that made this experience take place. The many that donated to this cause, it is truly wonderful and has given Judy a most amazing opportunity. To Sky Jump Auckland, the team were amazing! Thank you sincerely for all the support and the wonderful professional services you provide. A special mention to Jo Austin, Marketing Manager for assisting in making this project take place. Next Burn Survivor Sunday will take place on 25 June 2023. Details to be confirmed.
New Zealand welcomed Australian, John Weeks, burn survivor, winemaker and author of his new book, ‘Living without fingerprints’. It was a privilege and honour for the Burn Support Group to welcome John on his visit down under. Spending three weeks circulating the country promoting his fabulous new book, involving presentations, interviews and a well received Survivor Sunday. John shared his incredible journey as a burn survivor, spoke of his challenges, the trauma surrounding the incident and how he now looks at life as part 2 of his story. Through his own amazing photography offered in his book he is able to express the emotional and physical attributes during 12 months stay in hospital. The Burn Support Group would like to extend our many thanks to those that supported this project, it is invaluable to raise the awareness of burns, they do not discriminate and can affect not only the individual but all loved ones surrounding and even more importantly the direction that can be changed relating to finances, life styles and impending futures. Our sincere appreciation to: THE ROCK RADIO, EASTFM RADIO, HOWICK LIBRARY, HOWICK ROTARY CLUB, THE BREEZE RADIO WAIKATO, WAIKATO HOSPITAL WARD 7, EMERGE AOTEAROA, WARKWORTH LIBRARY, HUTT HOSPITAL, SIMPLE CAR HIRE and to the amazing team at HOMELAND RESTAURANT, AUCKLAND, special mention to Chef PETER GORDON and MC JIM KAYES. Also acknowledging MELISSA PATERSON and her family for hosting John at their Auckland home! We wish John all the very best with his book and all the very exciting chapters to come for him. On behalf of the Trustees, Board members and Michele, we hope you enjoyed your stay as much as we were inspired, encouraged and grateful to you for your time and passion. For those that are interested in purchasing John’s book, please contact the office where arrangements can be made.
First Survivor Sunday of 2023 – 26 March 2023
First Survivor Sunday of 2023, a very exciting morning as we watched burn survivor JUDY HOHAIA leap from 13000ft, making her way down in a tandem SKY JUMP. A perfect day for such an experience, Judy couldn’t keep the smile off her face as she achieved one of her lifetime wishes. A big thank you to those that attended in support of Judy. Followed with a light lunch the lively group chatted and shared in Judy’s achievement. Burn Support Group would like to express their gratitude to all those that made this experience take place. The many that donated to this cause, it is truly wonderful and has given Judy a most amazing opportunity. To Sky Jump Auckland, the team were amazing! Thank you sincerely for all the support and the wonderful professional services you provide. A special mention to Jo Austin, Marketing Manager for assisting in making this project take place. Next Burn Survivor Sunday will take place on 25 June 2023. Details to be confirmed.
Survivor Sunday Xmas Party 11th December 2022
The last Survivor Sunday event for the year was the funtime Xmas Party!
Fisher House hosted the afternoon with many sharing stories, children playing games provided by Promoking Ltd, lunch was served and raffles were won.
Face painter, Amy, did a fabulous job creating art with the children.
2022 we were lucky to be able to come together again and enjoy the events held over the year.
With an increase of numbers it is wonderful to welcome new and familiar faces to the burn family.
With Christmas just round the corner this gave an opportunity to wish everyone a safe and happy holiday time from Trustees, Board Members and Michele.
We look forward to seeing everyone in the New Year, mark your calendars with the 2023 Survivor Sunday dates:
- 27 March
- 25 June
- 3 September
- 10 December
Survivor Sunday 2nd October 2022
The Burn Support Group sincerely thanks Rangi Pouwhare for her wonderful presentation.
Rangi introduced the wonderful work her and her team from Mana Atea are providing to the individuals and families/whanau around the country.
This presentation was insightful, informative and raised matters that all can relate to in one way or another.
The information provided could be extremely beneficial to many in the burn community and it could be in your best interest to look into their website.
It was with great pleasure to see Rangi also be the lucky winner of the raffle.
It is always a pleasure to see those attending, Survivor Sunday is a wonderful platform to mix and mingle, discovering new resources and tools that are available, and an opportunity to chat with others similarly affected.
Thank you to Beekeeper’s Wife Cafe for the venue and the lovely lunch.
Last Survivor Sunday for 2022 is the Christmas Function booked for 11 December 2022.
Please contact the Michele on 021 863 670 or email michele@burns.org.nz to advise the number of people attending. Event is open to families.
Survivor Sunday 26th June 2022
Thank you to those that attended Survivor Sunday on 26 June 2022.
An entertaining and informative session held by Doctor Julian Loft (plastic surgeon) discussing 30 years experience in skin, ways research has developed and methods that have proven to be successful and options on how to move forward in relation to burn injuries.
Dr. Julian gave a wonderful and insightful presentation on a sensitive topic, yet somehow created much laughter and merriment, a well received session with many Q & A following.
Along with raising the awareness of house incidents, Sam Barnes (Home Safety Networks), gave a friendly reminder of getting house ready with the Winter season upon us.
visual presentation of how easy fires can start with general items in the kitchen cupboards!
A HUGE THANK YOU FOR BOTH PRESENTATIONS
We all wish Andrew the very best and know we will still see him at many events.
Congratulations were offered to Donna and Trevor as they embark on married life, may your life together be full of fun and pleasure.
Burn Support Group would also like to thank Zoe Garden (reporter) and Times Newspaper for their support towards this invaluable event.
The next Survivor Sunday will be 25 September 2022, watch our social media pages and this website for more information.
Survivor Sunday 13th March 2022
A fun day had by all, the first Survivor Sunday for some time and wonderful to see the many that came and shared time.
Many thanks to Pt Erin Pool, a fabulous venue with the weather on our side.
Burn Support Group would like to thank Pt Erin Pool for hosting the event, Mr Whippy (Rebecca) for your continued support and Spit Roast Catering for providing the superb lunch.
A special mention to Merran and daughter, Catherine, who made the trip up from Waikanae meeting and greeting other survivors.
Everyone is aware of the challenging times all have been faced with over the last few months. The Charity hopes that during these times you, family and friends stay safe, be kind and look after each other.
Congratulations to Toni McLeod, winner of the fabulous raffle.
Information will be available on the next Survivor Sunday, to be held on 26 June 2022 – watch this space!
Survivor Sunday 27th June 2021
Burn Support Group would like to extend a sincere thank you to the wonderful, informative and interesting guest speakers that attended this event.
Beginning with Ben and Koal from One Up Rehab, these guys share their passion and knowledge on what can only be described as a positive new product to the market. Since meeting with the lads at Women’s Retreat they have made numerous contacts who are as impressed as we have been with results.
Following a lovely lunch supplied by the team at BBYC we were captivated by research fellow, Vaughan Feistt.
With a wealth of knowledge and incredible hard work behind the scenes, Vaughan has been researching skin at Auckland University, the discoveries will be instrutmental for the burn survivors in the future.
Thank you to all those that attended, it is always a pleasure to catch up with the familiar faces and see the warm and welcoming embrace to newcomers.
A special mention to Kelsey Waghorn and her lovely mum, Shelley, it is wonderful you have met some of the lovely ladies that will be at the next year Retreat with you.
Next Retreat date is 26 September 2021 – keep an eye out for upcoming details.
Survivor Sunday 28th March 2021
Thank you to all those that attended the first Survivor Sunday for 2021.
A good day was had by all with a BBQ lunch, fabulous raffle, coffee truck and swimming available.
t is always a pleasure to meet new faces and watch relationships build with those attending.
A great catch up for those children who attended Camp in January…. thank you for the amazing support on the day.
Survivor Sundays are a valuable opportunity to meet others, share coping skills and understand “YOU ARE NOT ALONE.”
A very special thank you to Macleans Primary, Principle Matthew Cooke was more than supportive to give us access to the school pool area which proved a winner on the day…
Thank you to Chrissie Menzies for coming along and providing good coffee from her coffee truck, Coffeesmith… this support is extremely generous and truly appreciated.
Survivor Sunday 1st March 2020
Thank you to those that attended the first Survivor Sunday for the year.
Everyone was fortunate to hear from Belinda McKenzie, who shared her journey as a burn survivor, an inspiring, positive and encouraging story, on behalf of everyone – Thank you, Belinda.
Thanks to Tracee McKenzie and Yolanda O’Reilly for the Sip n Paint exercise. Loads of fun creating amazing canvases and the creative juices were flowing – what an incredible outcome.
On a beautiful day in a stunning venue, thanks to B.B.Y.C, burn survivors, family members and support persons meet and greet, a wonderful opportunity to share stories and journeys alike.
These events, held four times a year, are provided as a safe haven and environment in which the burn community get the chance to make genuine connections with others, rediscover their own strengths, and gain encouragement, inspiration and togetherness.. It is wonderful to see our familiar faces and welcome to the many newbies joining this valued event.
Thank you to all those who participated. An extra pleasure was having Pete Sharp, visit and catch up.
Survivor Sunday Xmas Party 8th December 2019
With 40+ people attending, it was a great catch-up for the children before Camp 2020, with the added fun of face painting by Claire Lenaghan, a surprise Xmas gift, and the ice cream truck with Atlesh Sharma providing soft serve ice cream. Thanks also to the Spit Roast Catering Company.
Parents, burn survivors new and old shared stories, celebrated the end of a year and looking forward to a healthy, happy new decade.
Burn Support Group wishes to thank all those who have contributed in many ways to the success of a busy and constructive year. It is a pleasure to see the increase in number of those attending the Survivor Sundays and the many other events throughout the year.
Hi All,
I would like to say a huge thank you… Thank you all for your support throughout 2018/2019 and for making the Burn Support Charitable Trust the mighty presence it is today. To you all, the volunteers including the patrons, office Staff, Board members, Trustees, Ambassadors, all the burn survivors and survivors’ families and on to the sponsors who have made the Burn Support Group an amazing resource for all those in need.
The last few weeks, with the White Island eruption, has more than likely stirred more than a few emotions and feelings of dread among you, but as you have done in the past and future, the survivors from this incident will also rise from the ashes just like the mighty phoenix.
The Burn Support Charitable Trust needs to hold their heads high; as a support group, you punch well above your weight and size compared to other countries and organisations. The amount of support you provide, resources, education and donations to the burn’s wards of many hospitals for equipment and training is invaluable.
Enjoy your Christmas and New Year, and stay safe.
Kia Kaha,
Peter Sharp
Survivor Sunday 18th August 2019
Solid day at Survivor Sunday run by the Burns Support Charitable Trust, a charity that encourages the community for burns survivors and support people as well as awareness around burns and burns prevention. Felt honoured to have my documentary played and be the guest speaker.
I chose to speak about the difference between a victim and a survivor, the importance of not letting your struggles hold you down and ruling you, but using them as a means to push you forward. Further, whilst there may be some negative connotations to scars that we have, it is important to see your scars, whether internal or external, as a story of how far you have come, how much you have grown and how courageous you are for having battled and overcome these struggles.
Overall a solid day with great and cheeky banter along the side and many amazing and inspiring burns survivors coming together to celebrate being the amazing survivors they all are and being a community together. Couldn’t ask for a greater and more inspiring bunch to be honest.
Survivor Sunday 19th May 2019
Thank you to all those that attended Survivor Sunday on Sunday 19 May – another great turn out at the lovely venue, Bucklands Beach Yacht Club.
The Burn Support Group were very pleased to welcome aboard new Ambassador, Jim Kayes, who shared his story and his affiliation for the Charity. Jim is one of those people who can tell a story, capturing a room of people with his wit and humor. Burn Support Group is thrilled to have Jim supporting all those throughout the burn community.
With a wonderful lunch and the beautiful voice of Shari, and friend Dianne, all the chit chat and catch up, a great day was had by all. A special mention to those people that make the journey each time coming from Timaru, Whangarei, Tauranga and Hamilton,
Thank you to Eastlife reporter, Lisa, who spent time and patience taking photos for the next edition, we truly appreciate the support and promotion of the Burn Support Group and particularly welcoming Jim to the team.
Survivor Sunday 24th February 2019
Thank you to The Beekeepers Wife for accommodating our first Survivor Sunday for 2019.
Our sincere appreciation to guest speakers, Moira and Terry Lee, who took time out whilst on holiday from Australia, to visit and speak with us, sharing their journey, starting when they were engulfed in the worst South Australian bush fires taking place in 2015. Truly inspiring, enormously courageous and with amazingly witty banter, Terry and Moira celebrated with us on how love, positivity and looking ahead by setting goals has them looking to brighter times in the future.
A wonderful day shared with plenty of chatter, lovely lunch, tears and laughter. A terrific start to the year with 33 attending. Lovely to see all our familiar faces back who warmly welcomed our new guests, coming from as far as Whangarei, Tauranga and Hamilton,
On behalf of the Burn Support Group thank you for your contributions, support and feedback.
Childrens Camps
There are many ways that you can get a burn
In Memoriam – Doreen Akrigg
Fifth April 2024, saw the passing of one very dear and longstanding fundraiser, and supporter of our charity, 96 year old, Doreen Akrigg.
When her then 8 year old grandson, Ben Cotton was burned in 1988, Doreen took it upon herself to organise regular ‘Knit and Natter’ groups in her home, and held knitting stalls with burn survivor, Helen Hall, at Middlemore Hospital and outside supermarkets all around Auckland.
She held these stalls for many years which raised many thousands of dollars for us.
Her staunch dedication and passion became instrumental in giving our charity the solid financial foundation it has today, and for this we will be forever grateful.
Rest in Peace dear Doreen, your efforts for the Burn Support Group Charitable Trust will never be forgotten.
Farewell – Jim Kayes
Best wishes, and our deepest appreciation of your tremendous support
Sadly, we farewell Jim Kayes as the Charity Ambassador for the past 5 years.Jim has volunteered his time, skills, personality and wonderful character for many events over the years. The Charity has been extremely fortunate to have Jim host, share his story, create much laughter and guest speak at the Children’s Camps, Survivor Sundays and fundraisers…
After some reflection Jim had to come to the decision that his life is busy, as a father of two, a high profile personality, something had to give. The Burn Support Group wishes to acknowledge all that Jim has contributed. As a Charity we feel privileged that you have supported above and beyond the burn survivor community during your time.
It has been a pleasure to meet you, hear your stories and it is contagious to be around your positive attitude.
On behalf of the Burn Support Charitable Trust, we wish Jim and his family all the very best for the future and his further endeavours.
Thank you to Linda
The Burn Support Charitable Trust wishes to acknowledge and express our deepest appreciation to Linda Legge, Clinical Nurse Specialist at Kidz First Hospital, for the past 15 years working with burn survivors from throughout New Zealand.
Linda spent 37 years working for Counties as a dedicated nurse alongside her peers. For the past 7 years Linda has been a great support towards the Charity involved in many of the initiatives provided to Kidz First that will benefit and enhance rehabilitation during the hospital stay.
Linda’s input has been invaluable and we thank you sincerely for your time and contribution.
Linda has resigned from her role, earning well deserved time with her family,
From the Trustees, Board Members and staff at Burn Support Group we wish you all the best for your future endeavours and what life has in store for you!
Kerrie Rutherford
It is with great regret and sadness that we accept the resignation of our Board Member, Trustee and Treasurer, Kerrie Rutherford.
We have been the fortunate recipient of Kerrie’s expertise, not only as an ‘Office Volunteer’ (2016), but also when she subsequently utilised her well honed financial and business skills, using them to the max in her later roles within our charity, totally upgrading and revamping our recording systems.
Kerrie not only devoted untold hours in doing this, but her professionalism has also been greatly appreciated in designing the graphics for our special events, plus voluntarily supporting Michele at our last two annual Women’s Retreats.
Her wealth of skills, combined with her compassion and empathy for our burn survivors has been invaluable in assisting us provide a high continuum of care for the special needs of those within our charity.
We will miss you so much Kerrie, but totally understand your current commitments and wish only the very best for you and your future endeavours.
Thank you again from the bottom of our hearts.
Thank you, Bert (May 2021)
The Burn Support Charitable Trust wishes to acknowledge and thank Mr Albert Alfred Chant (known as Bert) for his generous and kind bequest left to contribute and support the Burn Community throughout New Zealand.
Our sincere appreciation to the extended family for this wonderful gesture and thoughtfulness.
Alan Jeffry Breslau
This year saw the passing of a true gentleman.
On behalf of the Burn Support Charitable Trust we remember, with much fondness and appreciation, the wonderful dignified, witty, charming, passionate, dedicated life that we have all had the privilege to share with Alan Breslau.
Words alone cannot express the extensive journey Alan has shared globally, touching the lives and hearts of so many fortunate people.
Alan’s talents, pioneer foresight with compassion and empathy shall never be forgotten, his well deserved accolades and awards always the reminder of this beautiful man’s achievements.
Alan will be missed by many, but remembered by all.
Burn Support Group Charitable Trust NZ.
We are deeply saddened to share that our founder, leader, encourager, and friend Alan Breslau passed away on 26 November 2020.
Alan was deeply loved by the burn community. His strong dedication, long term commitment, and unwavering desire to help others made him truly one of a kind.
Alan built the opportunity for the survivors around the world to connect, find healing, and learn to survive and thrive again.
Please keep Delwyn Breslau and their family in your thoughts at this time.
Phoenix Society Team/ USA, Amy Acton
Tribute to Alan
…“What a Man”…
I could talk about how Alan was born in New York and that he graduated in Music, Arts and Chemical engineering while specializing in Plastic’s … but I won’t… Alan would have hated that word… “WONT”
…“What a Man”…
I could also talk about how Alan was the Technical director of two very large plastic’s company’s in New York and Hong Kong and that he had written many chapters for books and resource papers in regards to polymers, plastic’s and resins and that he had also written and published two of his own books on his life experiences from the time of his plane crash, good, bad, and indifferent… But I’m not going to.
…“What a Man”…
I should also talk about Alan’s Plane crash on July 2, 1963 when the Mohawk 449 plane he was traveling in crash landed beside a runway during a tornado near Lake Ontario, New York. His accident and his life since is well documented in his books, articles and spoken about by many. A story that has helped so many and will continue to do so.
But I’m not going to talk about this.
I should talk about Alans role in setting up, and being the founding father of the Phoenix Society for Burns Survivors, based in Grand Rapids, Michigan. I could talk about the first World Burns Congress that the Phoenix Society for Burns Survivors held where Delwyn was invited as a guest speaker. They obviously made quite an impact on each other … leading them to the alter and an exciting new journey together.
… Yeah Alan, You’re the Man… !!
I should talk about how many awards Alan and Delwyn have received over the years including their very own award, “The Breslau Award” and “The Local Heroes Award” for the tireless work they have done for Burn Survivors Internationally…
In 2016 Alan was up against Rodney Wayne, I found this particularly funny as Alan didn’t have any hair and I have always wondered what the conversation between Rodney Wayne and Alan Breslau would have been on that night.
I’d like to talk about the time I meet Alan and the next 8 years of his and Delwyn’s life… the fond memories, banter and small talk that I had with Alan.
The first time I met Alan was him behind a piano.
I knew who he was and had heard about him… then… ‘I heard him’… Alan was a fine pianist and every time there was a piano in the room he would usually end up sitting in front of the keys.
There was a gleam in his eye as he headed in the piano’s direction, an acknowledgement that hey I’m here and it won’t be long!
My daughter, Jorja, is a burn survivor and I meet Alan and Delwyn through the children’s camps they attended here in New Zealand. Delwyn as founder and Alan as patron of the Burn Support Group Charitable Trust. Alan and Delwyn have helped so many people national and internationally through their tireless work in burn support, burn management, fundraising and giving back with their big hearts. It didn’t matter of your background or past, if you needed any help, in healing scars externally or internally these were your ‘go to’ people… “Oh and the Talking Stick!”
I was lucky enough, as president of the burn support group charitable trust to be flown to the world Burns congress in Dallas 2017 and Grand Rapids 2018, this is where I learned how much of a “Rockstar” Alan was… In Dallas we were in a room with over 1000 people and each of them had been brought there because of one man… this man however, had a fall at home 24 hours prior to flying out and had broken his collar bone unbeknown to those at congress. Everyone wanted to shake Alan’s hand. Obviously Delwyn did her best to stop people, but Alan kept putting out his hand to great old friends and make new ones in true ‘Rockstar Fashion’. Our New Zealand Contingent cringed every time someone went in for a firm handshake. Alan also played the piano during the Talent Show during this World Burns Congress with his broken collar bone.
In Dallas I also learnt how much Alan liked BBQ’d meat. We had a meal at Lockhart’s BBQ Smoke House, one of the oldest smokehouses in Dallas Texas. Not only did Alan like BBQ meat he had a passion for puddings and desserts… he really did like his sweet treats.
Alan never minced his words and didn’t beat around the bush in what he wanted to say. It didn’t matter where you were at the time… in an AGM or in a hotel corridor. If something was on his mind, he got it out. It was always a pleasure to sit down and have a chat. I wish that I had got to spend more time with him, I would have asked more questions, I really wanted to know more about Plastics and Polymers! Alan was always willing to give you the time of day for a decent discussion and chat.
I remember asking Alan why he likes wearing the dark sunglasses, his response was, it makes me look cool. He advised me one day that as he had only one working eye it can move around further and he could see more out of the corner of his eye… more than most people. A lot of people didn’t know this little party trick.
In Grand Rapids we visited the newly renovated Phoenix Society head office. On Google maps it only looked like a only a few blocks away, so being a lovely day we walked. I pushed Alan in his wheel chair and Alan kept saying, “why are you going so slow?” Wow it was like pushing Michael Schumacher in a wheelchair. Thank you, George for picking Alan and Delwyn up when we had finished our visit, so the rest of us could have a nice casual stroll back to the hotel.
Alan was more than welcoming to talk to young burn survivors and share his expertise and guidance in a way that they not only listened, but understood that everyone has a story. It was always easy to share with Alan. Myself include with my own story, with the magic help of the “Talking Stick”.
The funniest moment I’ve had with Alan and Delwyn would have been at a burns camp in Albany when Delwyn, in true Delwyn style, came out and said, “I don’t want to alarm anyone, but has anyone seen Alans ear?” Alan has lost his ear! This is something you don’t hear every day – excuse the pun – and I probably would never hear again – pun intended!
There have been so many messages on social media and the out pouring of loss of Alan’s life and the love to Delwyn. What people on Social media have been saying about Alan really reflects himself and his personality and we can all relate here are just a few.
A legend.
A truly amazing man.
A man who truly made a difference.
A golden heart stopped beating.
Inspired many for strength and healing.
A Life fully lived.
A true legacy and inspiration.
He made a difference.
A victor of circumstances.
This man leaves a lasting impact on us all.
….”What a Man”….
Carol Mayer
The Burn Support Charitable Trust wishes to express our deepest condolences to the Mayer family, and to our Australian friends you have had the privilege of having met the amazing Carol Mayer.
Carol attended 2019 Women’s Burn Retreat where we were to meet an incredibly inspiring, courageous woman who was as real as they come, with a desire and yearn to support, educate and care for burn survivors within the community.
Carol will always be remembered for her smile, her generous heart and the ability to make everyone feel beautiful.
R.I.P CAROL, you’ll always be in our hearts….
Thank you to the family of Georgena Frances Moran
In October 2020 a very kind and generous legacy was donated to the Burn Support Charitable Trust.
This large donation enables the events in place to continue and gives opportunity to expand on new projects.
June 2020
After many years, The Burn Support Group Charitable Trust has received notification that our dedicated, wonderful, Jan Steele has resigned as a Board member and Trustee of the BSGCT.
Although, now not technically holding a role, Jan will always be a part of our whanau.
Her devotion to the BSGCT began in 1988 and during her very long tenure with the Charity she held such roles as Vice President, Trustee, Minutes Secretary and Treasurer.
For over 30 years she has dedicated her time to supporting burn survivors in New Zealand, affecting countless lives in the process.
There is no doubt that the impact she made has had a permanent impact on the Charity, and we are so very fortunate to have had someone with that love and dedication.
The Burn Support Group’s success today is a direct result of Jan’s hard work and commitment to burn survivor support.
Our sincerest thanks to you, Jan.
Nick Nielson
President
Former burns nurse reflects on more than 33 years on the job
18 June 2019 | Techniques for nursing burns patients have changed dramatically in the years since Jan Steele first started working at Middlemore Hospital.
Ms Steele, who recently retired from her role as a nurse at the Auckland Regional and National Burns service after 33 and a half years, says patients used to be bathed daily in lux flakes.
“Then it went to baby shampoo, then salt, and then Dermaveen which created a bath that looked like porridge,” she says.
In earlier times, these baths occurred with some pain relief for patients but not with the attendance of an anaesthetist. In those days up to three staff were required to assist in the process. Ms Steele remembers the first time an anaesthetist was called before a patient was bathed.
“We booked the anaesthetist in. He was a lovely man. He said he’d be there at a set time and would expect a coffee, a donut and a chocolate fish. He just about fell over when he arrived and was presented with exactly that,” she says, adding the team provided said refreshments every time the anaesthetist attended the unit from then on.
Wound care products have improved since that time – and patients thankfully undergo fewer dressing changes and baths.
Reflecting over her years at the service which treats the most severe burns in the country, Ms Steele says it was a privilege to work with the patients.
“Looking back, you share the journey with the patient. When they have a good day, you have a good day. They come into hospital and you don’t know them from a bar of soap. They trust us with their life.”
She acknowledges it takes a special kind of person to work with people who are in such a vulnerable time of their lives.
“We’ve got to know when to display empathy and sympathy, but at the same time they’ve got to be rehabilitated. Rehabilitation begins from the time of their injury and involves surgeons, nurses and physiotherapists, but ultimately it is the patient who determines the end result,’ she says.
Factors such as wearing pressure garments and splints, doing prescribed exercises, and keeping skin moisturised are all important and sometimes patients need to be pushed to persist with physiotherapy, even when it is uncomfortable.
“It really is a case of being cruel to be kind.”
Ms Steele says she treated all patients equally, regardless of the seriousness of their burns. It has been rewarding seeing former inpatients return to the service for various appointments.
“On my last day a patient that I had nursed years before came back to the unit and donated a computer for the dayroom in appreciation of the care I gave him and other patients. That was very humbling for me,” she says.
Now enjoying a slower paced life with her husband in the Coromandel, Ms Steel says she couldn’t have asked for a better working place.
“It is a wonderful place. You can make such a difference.”
Pete Sharp
August 2019 | It is with regret Pete Sharp has had to resign from the Board.
Pete has been a fabulous President for the past two years and all of us connected to the Burn Support Group wish him all the very best in his future endeavors.
Pete has been instrumental in the Charity moving ahead with his great leadership qualities, his ability to connect with the burn community and his invaluable input to all new and exciting initiatives.
From all of us that have the privilege of working alongside you, you will be greatly missed…
Toni MacLeod
Burn Support Group offers condolences to Toni MacLeod (pictured right) who’s husband, Harold MacLeod (commonly known as Mac), sadly passed away on 7 March 2018.
Toni has always been extremely supportive of the Burn Support Group, offering her services wherever necessary.
Thank you, Toni, for everything you do and our thoughts go out to you at this time.
George Stephen
The Burn Support Charitable Trust would like to offer our deepest condolscenses to George Stephens‘ family. George passed away on 6 November 2017.
George held the position of President and Trustee from 2010 until his resignation in 2013.
George was extremely well respected and held in high esteem by all those that came into contact with him.
RIP George.
Rosemary Barling
We would like to extend our well wishes to Rosemary Barling for her exciting new future with her family down Nelson.
Rosemary has been part of the Burn Support Group since 1993, joining as a Board Member, until her role as Secretary of the Minutes.
Thank you for your dedication and support, Rosemary, you will be fondly missed.
Sugar Club Event Photos
All photos by Anvin Valantine | fernflicks
During his spare time, he gets creative with photography and film making at his passion transformed business, fernflicks.
Anvin has done various corporate videos, weddings, events and dance performances.
You can reach him at craft@fernflicks.com | 022 501 0205
at $5.00 per photo.
Grant-A-Wish
2019 was the start of the Camp Awhi Grant-A-Wish
Each attending camper is given the opportunity to discuss, contemplate and enter a wish of their choice before the last evening, where one very lucky camper will have that wish pulled from the hat and the Burn Support Group will endeavour to make that wish happen at both parties earliest convenience.
In Memoriam – Doreen Akrigg
Fifth April 2024, saw the passing of one very dear and longstanding fundraiser, and supporter of our charity, 96 year old, Doreen Akrigg.
When her then 8 year old grandson, Ben Cotton was burned in 1988, Doreen took it upon herself to organise regular ‘Knit and Natter’ groups in her home, and held knitting stalls with burn survivor, Helen Hall, at Middlemore Hospital and outside supermarkets all around Auckland.
She held these stalls for many years which raised many thousands of dollars for us.
Her staunch dedication and passion became instrumental in giving our charity the solid financial foundation it has today, and for this we will be forever grateful.
Rest in Peace dear Doreen, your efforts for the Burn Support Group Charitable Trust will never be forgotten.
Farewell – Jim Kayes
Best wishes, and our deepest appreciation of your tremendous support
Sadly, we farewell Jim Kayes as the Charity Ambassador for the past 5 years.Jim has volunteered his time, skills, personality and wonderful character for many events over the years. The Charity has been extremely fortunate to have Jim host, share his story, create much laughter and guest speak at the Children’s Camps, Survivor Sundays and fundraisers…
After some reflection Jim had to come to the decision that his life is busy, as a father of two, a high profile personality, something had to give. The Burn Support Group wishes to acknowledge all that Jim has contributed. As a Charity we feel privileged that you have supported above and beyond the burn survivor community during your time.
It has been a pleasure to meet you, hear your stories and it is contagious to be around your positive attitude.
On behalf of the Burn Support Charitable Trust, we wish Jim and his family all the very best for the future and his further endeavours.
Thank you to Linda
The Burn Support Charitable Trust wishes to acknowledge and express our deepest appreciation to Linda Legge, Clinical Nurse Specialist at Kidz First Hospital, for the past 15 years working with burn survivors from throughout New Zealand.
Linda spent 37 years working for Counties as a dedicated nurse alongside her peers. For the past 7 years Linda has been a great support towards the Charity involved in many of the initiatives provided to Kidz First that will benefit and enhance rehabilitation during the hospital stay.
Linda’s input has been invaluable and we thank you sincerely for your time and contribution.
Linda has resigned from her role, earning well deserved time with her family,
From the Trustees, Board Members and staff at Burn Support Group we wish you all the best for your future endeavours and what life has in store for you!
Kerrie Rutherford
It is with great regret and sadness that we accept the resignation of our Board Member, Trustee and Treasurer, Kerrie Rutherford.
We have been the fortunate recipient of Kerrie’s expertise, not only as an ‘Office Volunteer’ (2016), but also when she subsequently utilised her well honed financial and business skills, using them to the max in her later roles within our charity, totally upgrading and revamping our recording systems.
Kerrie not only devoted untold hours in doing this, but her professionalism has also been greatly appreciated in designing the graphics for our special events, plus voluntarily supporting Michele at our last two annual Women’s Retreats.
Her wealth of skills, combined with her compassion and empathy for our burn survivors has been invaluable in assisting us provide a high continuum of care for the special needs of those within our charity.
We will miss you so much Kerrie, but totally understand your current commitments and wish only the very best for you and your future endeavours.
Thank you again from the bottom of our hearts.
Thank you, Bert (May 2021)
The Burn Support Charitable Trust wishes to acknowledge and thank Mr Albert Alfred Chant (known as Bert) for his generous and kind bequest left to contribute and support the Burn Community throughout New Zealand.
Our sincere appreciation to the extended family for this wonderful gesture and thoughtfulness.
Alan Jeffry Breslau
This year saw the passing of a true gentleman.
On behalf of the Burn Support Charitable Trust we remember, with much fondness and appreciation, the wonderful dignified, witty, charming, passionate, dedicated life that we have all had the privilege to share with Alan Breslau.
Words alone cannot express the extensive journey Alan has shared globally, touching the lives and hearts of so many fortunate people.
Alan’s talents, pioneer foresight with compassion and empathy shall never be forgotten, his well deserved accolades and awards always the reminder of this beautiful man’s achievements.
Alan will be missed by many, but remembered by all.
Burn Support Group Charitable Trust NZ.
We are deeply saddened to share that our founder, leader, encourager, and friend Alan Breslau passed away on 26 November 2020.
Alan was deeply loved by the burn community. His strong dedication, long term commitment, and unwavering desire to help others made him truly one of a kind.
Alan built the opportunity for the survivors around the world to connect, find healing, and learn to survive and thrive again.
Please keep Delwyn Breslau and their family in your thoughts at this time.
Phoenix Society Team/ USA, Amy Acton
Tribute to Alan
…“What a Man”…
I could talk about how Alan was born in New York and that he graduated in Music, Arts and Chemical engineering while specializing in Plastic’s … but I won’t… Alan would have hated that word… “WONT”
…“What a Man”…
I could also talk about how Alan was the Technical director of two very large plastic’s company’s in New York and Hong Kong and that he had written many chapters for books and resource papers in regards to polymers, plastic’s and resins and that he had also written and published two of his own books on his life experiences from the time of his plane crash, good, bad, and indifferent… But I’m not going to.
…“What a Man”…
I should also talk about Alan’s Plane crash on July 2, 1963 when the Mohawk 449 plane he was traveling in crash landed beside a runway during a tornado near Lake Ontario, New York. His accident and his life since is well documented in his books, articles and spoken about by many. A story that has helped so many and will continue to do so.
But I’m not going to talk about this.
I should talk about Alans role in setting up, and being the founding father of the Phoenix Society for Burns Survivors, based in Grand Rapids, Michigan. I could talk about the first World Burns Congress that the Phoenix Society for Burns Survivors held where Delwyn was invited as a guest speaker. They obviously made quite an impact on each other … leading them to the alter and an exciting new journey together.
… Yeah Alan, You’re the Man… !!
I should talk about how many awards Alan and Delwyn have received over the years including their very own award, “The Breslau Award” and “The Local Heroes Award” for the tireless work they have done for Burn Survivors Internationally…
In 2016 Alan was up against Rodney Wayne, I found this particularly funny as Alan didn’t have any hair and I have always wondered what the conversation between Rodney Wayne and Alan Breslau would have been on that night.
I’d like to talk about the time I meet Alan and the next 8 years of his and Delwyn’s life… the fond memories, banter and small talk that I had with Alan.
The first time I met Alan was him behind a piano.
I knew who he was and had heard about him… then… ‘I heard him’… Alan was a fine pianist and every time there was a piano in the room he would usually end up sitting in front of the keys.
There was a gleam in his eye as he headed in the piano’s direction, an acknowledgement that hey I’m here and it won’t be long!
My daughter, Jorja, is a burn survivor and I meet Alan and Delwyn through the children’s camps they attended here in New Zealand. Delwyn as founder and Alan as patron of the Burn Support Group Charitable Trust. Alan and Delwyn have helped so many people national and internationally through their tireless work in burn support, burn management, fundraising and giving back with their big hearts. It didn’t matter of your background or past, if you needed any help, in healing scars externally or internally these were your ‘go to’ people… “Oh and the Talking Stick!”
I was lucky enough, as president of the burn support group charitable trust to be flown to the world Burns congress in Dallas 2017 and Grand Rapids 2018, this is where I learned how much of a “Rockstar” Alan was… In Dallas we were in a room with over 1000 people and each of them had been brought there because of one man… this man however, had a fall at home 24 hours prior to flying out and had broken his collar bone unbeknown to those at congress. Everyone wanted to shake Alan’s hand. Obviously Delwyn did her best to stop people, but Alan kept putting out his hand to great old friends and make new ones in true ‘Rockstar Fashion’. Our New Zealand Contingent cringed every time someone went in for a firm handshake. Alan also played the piano during the Talent Show during this World Burns Congress with his broken collar bone.
In Dallas I also learnt how much Alan liked BBQ’d meat. We had a meal at Lockhart’s BBQ Smoke House, one of the oldest smokehouses in Dallas Texas. Not only did Alan like BBQ meat he had a passion for puddings and desserts… he really did like his sweet treats.
Alan never minced his words and didn’t beat around the bush in what he wanted to say. It didn’t matter where you were at the time… in an AGM or in a hotel corridor. If something was on his mind, he got it out. It was always a pleasure to sit down and have a chat. I wish that I had got to spend more time with him, I would have asked more questions, I really wanted to know more about Plastics and Polymers! Alan was always willing to give you the time of day for a decent discussion and chat.
I remember asking Alan why he likes wearing the dark sunglasses, his response was, it makes me look cool. He advised me one day that as he had only one working eye it can move around further and he could see more out of the corner of his eye… more than most people. A lot of people didn’t know this little party trick.
In Grand Rapids we visited the newly renovated Phoenix Society head office. On Google maps it only looked like a only a few blocks away, so being a lovely day we walked. I pushed Alan in his wheel chair and Alan kept saying, “why are you going so slow?” Wow it was like pushing Michael Schumacher in a wheelchair. Thank you, George for picking Alan and Delwyn up when we had finished our visit, so the rest of us could have a nice casual stroll back to the hotel.
Alan was more than welcoming to talk to young burn survivors and share his expertise and guidance in a way that they not only listened, but understood that everyone has a story. It was always easy to share with Alan. Myself include with my own story, with the magic help of the “Talking Stick”.
The funniest moment I’ve had with Alan and Delwyn would have been at a burns camp in Albany when Delwyn, in true Delwyn style, came out and said, “I don’t want to alarm anyone, but has anyone seen Alans ear?” Alan has lost his ear! This is something you don’t hear every day – excuse the pun – and I probably would never hear again – pun intended!
There have been so many messages on social media and the out pouring of loss of Alan’s life and the love to Delwyn. What people on Social media have been saying about Alan really reflects himself and his personality and we can all relate here are just a few.
A legend.
A truly amazing man.
A man who truly made a difference.
A golden heart stopped beating.
Inspired many for strength and healing.
A Life fully lived.
A true legacy and inspiration.
He made a difference.
A victor of circumstances.
This man leaves a lasting impact on us all.
….”What a Man”….
Carol Mayer
The Burn Support Charitable Trust wishes to express our deepest condolences to the Mayer family, and to our Australian friends you have had the privilege of having met the amazing Carol Mayer.
Carol attended 2019 Women’s Burn Retreat where we were to meet an incredibly inspiring, courageous woman who was as real as they come, with a desire and yearn to support, educate and care for burn survivors within the community.
Carol will always be remembered for her smile, her generous heart and the ability to make everyone feel beautiful.
R.I.P CAROL, you’ll always be in our hearts….
Thank you to the family of Georgena Frances Moran
In October 2020 a very kind and generous legacy was donated to the Burn Support Charitable Trust.
This large donation enables the events in place to continue and gives opportunity to expand on new projects.
June 2020
After many years, The Burn Support Group Charitable Trust has received notification that our dedicated, wonderful, Jan Steele has resigned as a Board member and Trustee of the BSGCT.
Although, now not technically holding a role, Jan will always be a part of our whanau.
Her devotion to the BSGCT began in 1988 and during her very long tenure with the Charity she held such roles as Vice President, Trustee, Minutes Secretary and Treasurer.
For over 30 years she has dedicated her time to supporting burn survivors in New Zealand, affecting countless lives in the process.
There is no doubt that the impact she made has had a permanent impact on the Charity, and we are so very fortunate to have had someone with that love and dedication.
The Burn Support Group’s success today is a direct result of Jan’s hard work and commitment to burn survivor support.
Our sincerest thanks to you, Jan.
Nick Nielson
President
Former burns nurse reflects on more than 33 years on the job
18 June 2019 | Techniques for nursing burns patients have changed dramatically in the years since Jan Steele first started working at Middlemore Hospital.
Ms Steele, who recently retired from her role as a nurse at the Auckland Regional and National Burns service after 33 and a half years, says patients used to be bathed daily in lux flakes.
“Then it went to baby shampoo, then salt, and then Dermaveen which created a bath that looked like porridge,” she says.
In earlier times, these baths occurred with some pain relief for patients but not with the attendance of an anaesthetist. In those days up to three staff were required to assist in the process. Ms Steele remembers the first time an anaesthetist was called before a patient was bathed.
“We booked the anaesthetist in. He was a lovely man. He said he’d be there at a set time and would expect a coffee, a donut and a chocolate fish. He just about fell over when he arrived and was presented with exactly that,” she says, adding the team provided said refreshments every time the anaesthetist attended the unit from then on.
Wound care products have improved since that time – and patients thankfully undergo fewer dressing changes and baths.
Reflecting over her years at the service which treats the most severe burns in the country, Ms Steele says it was a privilege to work with the patients.
“Looking back, you share the journey with the patient. When they have a good day, you have a good day. They come into hospital and you don’t know them from a bar of soap. They trust us with their life.”
She acknowledges it takes a special kind of person to work with people who are in such a vulnerable time of their lives.
“We’ve got to know when to display empathy and sympathy, but at the same time they’ve got to be rehabilitated. Rehabilitation begins from the time of their injury and involves surgeons, nurses and physiotherapists, but ultimately it is the patient who determines the end result,’ she says.
Factors such as wearing pressure garments and splints, doing prescribed exercises, and keeping skin moisturised are all important and sometimes patients need to be pushed to persist with physiotherapy, even when it is uncomfortable.
“It really is a case of being cruel to be kind.”
Ms Steele says she treated all patients equally, regardless of the seriousness of their burns. It has been rewarding seeing former inpatients return to the service for various appointments.
“On my last day a patient that I had nursed years before came back to the unit and donated a computer for the dayroom in appreciation of the care I gave him and other patients. That was very humbling for me,” she says.
Now enjoying a slower paced life with her husband in the Coromandel, Ms Steel says she couldn’t have asked for a better working place.
“It is a wonderful place. You can make such a difference.”
Pete Sharp
August 2019 | It is with regret Pete Sharp has had to resign from the Board.
Pete has been a fabulous President for the past two years and all of us connected to the Burn Support Group wish him all the very best in his future endeavors.
Pete has been instrumental in the Charity moving ahead with his great leadership qualities, his ability to connect with the burn community and his invaluable input to all new and exciting initiatives.
From all of us that have the privilege of working alongside you, you will be greatly missed…
Toni MacLeod
Burn Support Group offers condolences to Toni MacLeod (pictured right) who’s husband, Harold MacLeod (commonly known as Mac), sadly passed away on 7 March 2018.
Toni has always been extremely supportive of the Burn Support Group, offering her services wherever necessary.
Thank you, Toni, for everything you do and our thoughts go out to you at this time.
George Stephen
The Burn Support Charitable Trust would like to offer our deepest condolscenses to George Stephens‘ family. George passed away on 6 November 2017.
George held the position of President and Trustee from 2010 until his resignation in 2013.
George was extremely well respected and held in high esteem by all those that came into contact with him.
RIP George.
Rosemary Barling
We would like to extend our well wishes to Rosemary Barling for her exciting new future with her family down Nelson.
Rosemary has been part of the Burn Support Group since 1993, joining as a Board Member, until her role as Secretary of the Minutes.
Thank you for your dedication and support, Rosemary, you will be fondly missed.
Raise Awareness
There are many ways that you can get a burn
In Memoriam – Doreen Akrigg
Fifth April 2024, saw the passing of one very dear and longstanding fundraiser, and supporter of our charity, 96 year old, Doreen Akrigg.
When her then 8 year old grandson, Ben Cotton was burned in 1988, Doreen took it upon herself to organise regular ‘Knit and Natter’ groups in her home, and held knitting stalls with burn survivor, Helen Hall, at Middlemore Hospital and outside supermarkets all around Auckland.
She held these stalls for many years which raised many thousands of dollars for us.
Her staunch dedication and passion became instrumental in giving our charity the solid financial foundation it has today, and for this we will be forever grateful.
Rest in Peace dear Doreen, your efforts for the Burn Support Group Charitable Trust will never be forgotten.
Farewell – Jim Kayes
Best wishes, and our deepest appreciation of your tremendous support
Sadly, we farewell Jim Kayes as the Charity Ambassador for the past 5 years.Jim has volunteered his time, skills, personality and wonderful character for many events over the years. The Charity has been extremely fortunate to have Jim host, share his story, create much laughter and guest speak at the Children’s Camps, Survivor Sundays and fundraisers…
After some reflection Jim had to come to the decision that his life is busy, as a father of two, a high profile personality, something had to give. The Burn Support Group wishes to acknowledge all that Jim has contributed. As a Charity we feel privileged that you have supported above and beyond the burn survivor community during your time.
It has been a pleasure to meet you, hear your stories and it is contagious to be around your positive attitude.
On behalf of the Burn Support Charitable Trust, we wish Jim and his family all the very best for the future and his further endeavours.
Thank you to Linda
The Burn Support Charitable Trust wishes to acknowledge and express our deepest appreciation to Linda Legge, Clinical Nurse Specialist at Kidz First Hospital, for the past 15 years working with burn survivors from throughout New Zealand.
Linda spent 37 years working for Counties as a dedicated nurse alongside her peers. For the past 7 years Linda has been a great support towards the Charity involved in many of the initiatives provided to Kidz First that will benefit and enhance rehabilitation during the hospital stay.
Linda’s input has been invaluable and we thank you sincerely for your time and contribution.
Linda has resigned from her role, earning well deserved time with her family,
From the Trustees, Board Members and staff at Burn Support Group we wish you all the best for your future endeavours and what life has in store for you!
Kerrie Rutherford
It is with great regret and sadness that we accept the resignation of our Board Member, Trustee and Treasurer, Kerrie Rutherford.
We have been the fortunate recipient of Kerrie’s expertise, not only as an ‘Office Volunteer’ (2016), but also when she subsequently utilised her well honed financial and business skills, using them to the max in her later roles within our charity, totally upgrading and revamping our recording systems.
Kerrie not only devoted untold hours in doing this, but her professionalism has also been greatly appreciated in designing the graphics for our special events, plus voluntarily supporting Michele at our last two annual Women’s Retreats.
Her wealth of skills, combined with her compassion and empathy for our burn survivors has been invaluable in assisting us provide a high continuum of care for the special needs of those within our charity.
We will miss you so much Kerrie, but totally understand your current commitments and wish only the very best for you and your future endeavours.
Thank you again from the bottom of our hearts.
Thank you, Bert (May 2021)
The Burn Support Charitable Trust wishes to acknowledge and thank Mr Albert Alfred Chant (known as Bert) for his generous and kind bequest left to contribute and support the Burn Community throughout New Zealand.
Our sincere appreciation to the extended family for this wonderful gesture and thoughtfulness.
Alan Jeffry Breslau
This year saw the passing of a true gentleman.
On behalf of the Burn Support Charitable Trust we remember, with much fondness and appreciation, the wonderful dignified, witty, charming, passionate, dedicated life that we have all had the privilege to share with Alan Breslau.
Words alone cannot express the extensive journey Alan has shared globally, touching the lives and hearts of so many fortunate people.
Alan’s talents, pioneer foresight with compassion and empathy shall never be forgotten, his well deserved accolades and awards always the reminder of this beautiful man’s achievements.
Alan will be missed by many, but remembered by all.
Burn Support Group Charitable Trust NZ.
We are deeply saddened to share that our founder, leader, encourager, and friend Alan Breslau passed away on 26 November 2020.
Alan was deeply loved by the burn community. His strong dedication, long term commitment, and unwavering desire to help others made him truly one of a kind.
Alan built the opportunity for the survivors around the world to connect, find healing, and learn to survive and thrive again.
Please keep Delwyn Breslau and their family in your thoughts at this time.
Phoenix Society Team/ USA, Amy Acton
Tribute to Alan
…“What a Man”…
I could talk about how Alan was born in New York and that he graduated in Music, Arts and Chemical engineering while specializing in Plastic’s … but I won’t… Alan would have hated that word… “WONT”
…“What a Man”…
I could also talk about how Alan was the Technical director of two very large plastic’s company’s in New York and Hong Kong and that he had written many chapters for books and resource papers in regards to polymers, plastic’s and resins and that he had also written and published two of his own books on his life experiences from the time of his plane crash, good, bad, and indifferent… But I’m not going to.
…“What a Man”…
I should also talk about Alan’s Plane crash on July 2, 1963 when the Mohawk 449 plane he was traveling in crash landed beside a runway during a tornado near Lake Ontario, New York. His accident and his life since is well documented in his books, articles and spoken about by many. A story that has helped so many and will continue to do so.
But I’m not going to talk about this.
I should talk about Alans role in setting up, and being the founding father of the Phoenix Society for Burns Survivors, based in Grand Rapids, Michigan. I could talk about the first World Burns Congress that the Phoenix Society for Burns Survivors held where Delwyn was invited as a guest speaker. They obviously made quite an impact on each other … leading them to the alter and an exciting new journey together.
… Yeah Alan, You’re the Man… !!
I should talk about how many awards Alan and Delwyn have received over the years including their very own award, “The Breslau Award” and “The Local Heroes Award” for the tireless work they have done for Burn Survivors Internationally…
In 2016 Alan was up against Rodney Wayne, I found this particularly funny as Alan didn’t have any hair and I have always wondered what the conversation between Rodney Wayne and Alan Breslau would have been on that night.
I’d like to talk about the time I meet Alan and the next 8 years of his and Delwyn’s life… the fond memories, banter and small talk that I had with Alan.
The first time I met Alan was him behind a piano.
I knew who he was and had heard about him… then… ‘I heard him’… Alan was a fine pianist and every time there was a piano in the room he would usually end up sitting in front of the keys.
There was a gleam in his eye as he headed in the piano’s direction, an acknowledgement that hey I’m here and it won’t be long!
My daughter, Jorja, is a burn survivor and I meet Alan and Delwyn through the children’s camps they attended here in New Zealand. Delwyn as founder and Alan as patron of the Burn Support Group Charitable Trust. Alan and Delwyn have helped so many people national and internationally through their tireless work in burn support, burn management, fundraising and giving back with their big hearts. It didn’t matter of your background or past, if you needed any help, in healing scars externally or internally these were your ‘go to’ people… “Oh and the Talking Stick!”
I was lucky enough, as president of the burn support group charitable trust to be flown to the world Burns congress in Dallas 2017 and Grand Rapids 2018, this is where I learned how much of a “Rockstar” Alan was… In Dallas we were in a room with over 1000 people and each of them had been brought there because of one man… this man however, had a fall at home 24 hours prior to flying out and had broken his collar bone unbeknown to those at congress. Everyone wanted to shake Alan’s hand. Obviously Delwyn did her best to stop people, but Alan kept putting out his hand to great old friends and make new ones in true ‘Rockstar Fashion’. Our New Zealand Contingent cringed every time someone went in for a firm handshake. Alan also played the piano during the Talent Show during this World Burns Congress with his broken collar bone.
In Dallas I also learnt how much Alan liked BBQ’d meat. We had a meal at Lockhart’s BBQ Smoke House, one of the oldest smokehouses in Dallas Texas. Not only did Alan like BBQ meat he had a passion for puddings and desserts… he really did like his sweet treats.
Alan never minced his words and didn’t beat around the bush in what he wanted to say. It didn’t matter where you were at the time… in an AGM or in a hotel corridor. If something was on his mind, he got it out. It was always a pleasure to sit down and have a chat. I wish that I had got to spend more time with him, I would have asked more questions, I really wanted to know more about Plastics and Polymers! Alan was always willing to give you the time of day for a decent discussion and chat.
I remember asking Alan why he likes wearing the dark sunglasses, his response was, it makes me look cool. He advised me one day that as he had only one working eye it can move around further and he could see more out of the corner of his eye… more than most people. A lot of people didn’t know this little party trick.
In Grand Rapids we visited the newly renovated Phoenix Society head office. On Google maps it only looked like a only a few blocks away, so being a lovely day we walked. I pushed Alan in his wheel chair and Alan kept saying, “why are you going so slow?” Wow it was like pushing Michael Schumacher in a wheelchair. Thank you, George for picking Alan and Delwyn up when we had finished our visit, so the rest of us could have a nice casual stroll back to the hotel.
Alan was more than welcoming to talk to young burn survivors and share his expertise and guidance in a way that they not only listened, but understood that everyone has a story. It was always easy to share with Alan. Myself include with my own story, with the magic help of the “Talking Stick”.
The funniest moment I’ve had with Alan and Delwyn would have been at a burns camp in Albany when Delwyn, in true Delwyn style, came out and said, “I don’t want to alarm anyone, but has anyone seen Alans ear?” Alan has lost his ear! This is something you don’t hear every day – excuse the pun – and I probably would never hear again – pun intended!
There have been so many messages on social media and the out pouring of loss of Alan’s life and the love to Delwyn. What people on Social media have been saying about Alan really reflects himself and his personality and we can all relate here are just a few.
A legend.
A truly amazing man.
A man who truly made a difference.
A golden heart stopped beating.
Inspired many for strength and healing.
A Life fully lived.
A true legacy and inspiration.
He made a difference.
A victor of circumstances.
This man leaves a lasting impact on us all.
….”What a Man”….
Carol Mayer
The Burn Support Charitable Trust wishes to express our deepest condolences to the Mayer family, and to our Australian friends you have had the privilege of having met the amazing Carol Mayer.
Carol attended 2019 Women’s Burn Retreat where we were to meet an incredibly inspiring, courageous woman who was as real as they come, with a desire and yearn to support, educate and care for burn survivors within the community.
Carol will always be remembered for her smile, her generous heart and the ability to make everyone feel beautiful.
R.I.P CAROL, you’ll always be in our hearts….
Thank you to the family of Georgena Frances Moran
In October 2020 a very kind and generous legacy was donated to the Burn Support Charitable Trust.
This large donation enables the events in place to continue and gives opportunity to expand on new projects.
June 2020
After many years, The Burn Support Group Charitable Trust has received notification that our dedicated, wonderful, Jan Steele has resigned as a Board member and Trustee of the BSGCT.
Although, now not technically holding a role, Jan will always be a part of our whanau.
Her devotion to the BSGCT began in 1988 and during her very long tenure with the Charity she held such roles as Vice President, Trustee, Minutes Secretary and Treasurer.
For over 30 years she has dedicated her time to supporting burn survivors in New Zealand, affecting countless lives in the process.
There is no doubt that the impact she made has had a permanent impact on the Charity, and we are so very fortunate to have had someone with that love and dedication.
The Burn Support Group’s success today is a direct result of Jan’s hard work and commitment to burn survivor support.
Our sincerest thanks to you, Jan.
Nick Nielson
President
Former burns nurse reflects on more than 33 years on the job
18 June 2019 | Techniques for nursing burns patients have changed dramatically in the years since Jan Steele first started working at Middlemore Hospital.
Ms Steele, who recently retired from her role as a nurse at the Auckland Regional and National Burns service after 33 and a half years, says patients used to be bathed daily in lux flakes.
“Then it went to baby shampoo, then salt, and then Dermaveen which created a bath that looked like porridge,” she says.
In earlier times, these baths occurred with some pain relief for patients but not with the attendance of an anaesthetist. In those days up to three staff were required to assist in the process. Ms Steele remembers the first time an anaesthetist was called before a patient was bathed.
“We booked the anaesthetist in. He was a lovely man. He said he’d be there at a set time and would expect a coffee, a donut and a chocolate fish. He just about fell over when he arrived and was presented with exactly that,” she says, adding the team provided said refreshments every time the anaesthetist attended the unit from then on.
Wound care products have improved since that time – and patients thankfully undergo fewer dressing changes and baths.
Reflecting over her years at the service which treats the most severe burns in the country, Ms Steele says it was a privilege to work with the patients.
“Looking back, you share the journey with the patient. When they have a good day, you have a good day. They come into hospital and you don’t know them from a bar of soap. They trust us with their life.”
She acknowledges it takes a special kind of person to work with people who are in such a vulnerable time of their lives.
“We’ve got to know when to display empathy and sympathy, but at the same time they’ve got to be rehabilitated. Rehabilitation begins from the time of their injury and involves surgeons, nurses and physiotherapists, but ultimately it is the patient who determines the end result,’ she says.
Factors such as wearing pressure garments and splints, doing prescribed exercises, and keeping skin moisturised are all important and sometimes patients need to be pushed to persist with physiotherapy, even when it is uncomfortable.
“It really is a case of being cruel to be kind.”
Ms Steele says she treated all patients equally, regardless of the seriousness of their burns. It has been rewarding seeing former inpatients return to the service for various appointments.
“On my last day a patient that I had nursed years before came back to the unit and donated a computer for the dayroom in appreciation of the care I gave him and other patients. That was very humbling for me,” she says.
Now enjoying a slower paced life with her husband in the Coromandel, Ms Steel says she couldn’t have asked for a better working place.
“It is a wonderful place. You can make such a difference.”
Pete Sharp
August 2019 | It is with regret Pete Sharp has had to resign from the Board.
Pete has been a fabulous President for the past two years and all of us connected to the Burn Support Group wish him all the very best in his future endeavors.
Pete has been instrumental in the Charity moving ahead with his great leadership qualities, his ability to connect with the burn community and his invaluable input to all new and exciting initiatives.
From all of us that have the privilege of working alongside you, you will be greatly missed…
Toni MacLeod
Burn Support Group offers condolences to Toni MacLeod (pictured right) who’s husband, Harold MacLeod (commonly known as Mac), sadly passed away on 7 March 2018.
Toni has always been extremely supportive of the Burn Support Group, offering her services wherever necessary.
Thank you, Toni, for everything you do and our thoughts go out to you at this time.
George Stephen
The Burn Support Charitable Trust would like to offer our deepest condolscenses to George Stephens‘ family. George passed away on 6 November 2017.
George held the position of President and Trustee from 2010 until his resignation in 2013.
George was extremely well respected and held in high esteem by all those that came into contact with him.
RIP George.
Rosemary Barling
We would like to extend our well wishes to Rosemary Barling for her exciting new future with her family down Nelson.
Rosemary has been part of the Burn Support Group since 1993, joining as a Board Member, until her role as Secretary of the Minutes.
Thank you for your dedication and support, Rosemary, you will be fondly missed.
For Health Professionals
Are you looking for support for a burn survivor?
How can the Burn Support Group Charitable Trust help your patient?
The aims of the Burn Support Group Charitable Trust, which is a non-profit organisation, are:
- To provide burn survivors (and their families) with support and assistance, during and after hospitalisation, and to help them to return to normal and satisfactory lives within the community.
- To lower the incidence of burn injuries by prevention, awareness and burn prevention education;
- To improve patient care by funding equipment where publicly funded resources are not available.
- To foster sharing of information between survivors, families, health professionals and other interested parties;
- To provide opportunities for mutual support from burn survivors, who through their experiences have found inner strengths and ‘risen like the Phoenix, from the ashes’.
The quote above, ‘Risen like the Phoenix, from the ashes’, is from our founder’s husband and one of our Patrons, Alan Breslau, who founded the Phoenix Society for Burn Survivors in the United States.
What can you expect after you have referred your patient to the Burn Support Group Charitable Trust?
- We will send you a letter to confirm we have received your referral.
- We will send a letter to the Burn Survivor advising of your referral and inviting them to contact us.
- We will send you a letter to advise you of the outcome of your referral.
Recommended Links
There are many ways that you can get a burn
Gerard Hoffman Counselling & Facilitation
Side by Side Counselling is affiliated with the Burn Support Group, offering workshops to participants with the focus on self-esteem enhancement.